This is Justin's story...On 12/20/07, Justin was rushed to Connecticut Children's Medical Center by the Life Star team, he was experiencing a long siezure and was turning blue.
Justin had received his four month immunizations on this date and we thought it was due to the shots. He spent 24 hours in the Pediatric Intensive Care Unit and then another 24 hours in the regular inpatient unit. Justin had an EEG done that was abnormal and we were told he may still have seizures. He was put on phenobarbitol and released. Over the course of the next 6 weeks, Justin experienced small seizures at home. On three different occasions he was brought to the ER for seizures that were prolonged. He needed an IV with medicine administered to stop these. We were told Justin had infant epilepsy but that there is always an underlying cause, and finding that cause may be difficult. Justin's medications were adjusted numerous times, until 1/29/08, when he was again rushed to the ER for a prolonged seizure. He was admitted to the hospital for 8 days. Justin was just released today :). Fortunately, Justin has had a normal MRI , but his EEG is still showing abnormalities on both sides of his brain. He is on two different seizure medications, but is still experiencing daily seizures, along with developmental delays. The neurologists say the most important thing is to get his seizures under control. Different blood tests are still being done to try and identify a cause. Justin meets with Birth to Three tommorow and we are hoping this will help with some of the develomental delays. This has been a very scary and emotional experience for my family, but we are staying strong and are remaining optimistic. Justin is a fighter and he will not let this get in his way!!!