×

CaringBridge Needs Your Help

Honor Justin with a Tribute donation to CaringBridge and you'll help even more people surround each other with love and support when it's needed most.

Donate Now

Justin’s Story

Justin is the middle triplet in a traveling circus family known as the Flying Condolucis!  Seriously, Justin is the greatest kid you could ever meet who just happens to have had cancer, four times, and has every intention of being cancer-free and becoming a pediatric oncologist when he grows up.  He is also a devoted Boston Red Sox fan, theatre geek and dog lover.  This is his journey, thanks for following along...On April 11, 2007 Justin was diagnosed with Acute Lymphoblastic Leukemia (ALL) and fell into the standard risk, pre-b category.  He spent the next 3.2 years in treatment at the Valerie Center at Monmouth Medical Center.On a routine check-up on December 13, 2010, six months off-treatment, it was discovered that had relapsed.  His treatment was moved to Children's Hospital of Philadelphia.  He underwent 1 year of intense chemo, 22 rounds of radiation and 1 year of maintenance chemo.  He completed treatment on March 1, 2013. On June 4, 2013 we got the horrible news once again, Justin had relapsed.  He underwent intensive chemo again which lead to some serious complications but got him to the point where he could receive a bone marrow transplant.  On September 26, 2013 Justin's sister Annie underwent the painful process of retrieving stem cells from her hip bone and later that day that precious gift of live-saving cells were infused into Justin.  He remained in the hospital for 9 weeks and continues with follow-up clinic visit to CHOP.  Sadly, on June 26 2014, exactly 9 months post-transplant a spinal tap was performed and we learned Justin has relapsed again.  He will likely participate in an experimental protocol called CART-19 at CHOP..  "When you pass through the water, I will be with you; And through the rivers, they shall not overflow you.  When you walk through the fire, you shall not be burned, nor shall the flame scorch you." Isaiah 43:2

Latest Journal Update

Truly Thankful

Before typing up this post I took a walk down memory lane to see what I posted last Thanksgiving.  I knew Justin was home from the hospital post-transplant and we were laying low (I had to cook – yikes).  I had forgotten that we were fearing another relapse as his platelets were trending very low at that time.  We got over that hump only to be knocked down a few months later… Oh well, at this point all that matters is faith, family and friends and we are blessed to have all three and thankfulness in our hearts to all be together  this year.

In the pursuit of all things normal Justin got braces last week!  He has needed and wanted braces for a very long time but his doctors have always told him he needed to wait.  Wait until after treatment… wait until a year after transplant… wait until after CART… well I made the command decision that he could wait no longer! Live or die the kid deserves to do it with straight teeth!  His oncologist was not surprised by my mutiny.  So many kids warned him how much it was going to hurt – seriously?!?  At this point the pain of braces to Justin is like a paper cut to Chuck Norris.

So we are excited for a few jam-packed weeks with the holidays and the triplets 16th birthday ahead.  Justin heads back to CHOP for chemo on December 5 and we will discuss CART again at that point and get a go date for January.  It’s going to happen but there is talk of possibly waiting for his marrow to show more disease first… we will see.  Right after the New Year some dear friends are putting on a really fun benefit for Justin at the Spring Lake Theater.  Over 50 performers will be performing songs from hit Broadway musicals. Our buddy Rob Bartlett, Broadway legend, comedian, and Imus in the Morning regular will be hosting.  To purchase tickets please go to www.songsforjustin.com

Also, lots of you have asked about the Give Forward online donation site.  We went ahead and reopened that as well.  Here’s the link:  https://www.giveforward.com/fundraiser/lr05/justin-s-fight-for-life-fund

 Have a safe, peaceful, happy, and meaningful Thanksgiving!  We are thankful for ALL of YOU!

heart
7 people hearted this

Comments

3 Comments

joe paduano
By Joe
A Happy Thanksgiving! Stay strong Justin. Always thinking of you and your family and sending positive thoughts.
Reen Garrity
By Reen
Your family motto should have "Carpe Diem!" in it... hugs and prayers and Thank You's and smiles (soon, smiles with straight teeth!)
Carla Volpe
By Carla Volpe
Happy Thanksgiving to Justin and family! xoxo