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Justin’s Story

Justin is the middle triplet in a traveling circus family known as the Flying Condolucis!  Seriously, Justin is the greatest kid you could ever meet who just happens to have had cancer, four times, and has every intention of being cancer-free and becoming a pediatric oncologist when he grows up.  He is also a devoted Boston Red Sox fan, theatre geek and dog lover.  This is his journey, thanks for following along...On April 11, 2007 Justin was diagnosed with Acute Lymphoblastic Leukemia (ALL) and fell into the standard risk, pre-b category.  He spent the next 3.2 years in treatment at the Valerie Center at Monmouth Medical Center.On a routine check-up on December 13, 2010, six months off-treatment, it was discovered that had relapsed.  His treatment was moved to Children's Hospital of Philadelphia.  He underwent 1 year of intense chemo, 22 rounds of radiation and 1 year of maintenance chemo.  He completed treatment on March 1, 2013. On June 4, 2013 we got the horrible news once again, Justin had relapsed.  He underwent intensive chemo again which lead to some serious complications but got him to the point where he could receive a bone marrow transplant.  On September 26, 2013 Justin's sister Annie underwent the painful process of retrieving stem cells from her hip bone and later that day that precious gift of live-saving cells were infused into Justin.  He remained in the hospital for 9 weeks and continues with follow-up clinic visit to CHOP.  Sadly, on June 26 2014, exactly 9 months post-transplant a spinal tap was performed and we learned Justin has relapsed again.  He will likely participate in an experimental protocol called CART-19 at CHOP..  "When you pass through the water, I will be with you; And through the rivers, they shall not overflow you.  When you walk through the fire, you shall not be burned, nor shall the flame scorch you." Isaiah 43:2

Latest Journal Update

Brave New World

They say bad news spreads like wild fire – well, apparently,so does good news!  In Justin’s own words:  “It's day one of the rest of my life! Today I got the incredible news that I am officially cancer FREE!! Praise The Lord!”  He posted this on Facebook as we were leaving CHOP and my cell promptly started blowing up. It took longer than everyone else but apparently CART-19 worked and those killer T-cell minions did the job they were sent to do.  There is no Minimal Residual Disease in Justin’s marrow from Monday. Additionally, there is no evidence of any CD-19+ b cells!  Trust me – all good news!

Honestly, I think I’m still in shock.  We are so used to receiving bad news I was just knee jerk prepared for it.  Dr.Rheingold gave me a hard copy of the lab report as evidence of Justin’s remission.  I’m considering decopaging it to the refrigerator.  She proudly pointed out that it was even reviewed by the big head honcho at the lab in Seattle – he’s seen Justin’s name one too many times and had a hard time believing it himself.

So, what now?  It’s a brave new world for Justin.  He will return to CHOP on May 14 for the 3 month bone marrow aspiration and after that we can pursue having his port removed. He will continue to require IVIG (intravenous immunoglobulin) to boost his immune system since the t-cells are good at killing cancer and the rest of the b-cells that his body needs to fight normal stuff, like a cold.  His platelets are still way too low (a minor concern right now) so local lab work will be required to keep an eye on it.  Also he needs to gain weight – big time.  Right now he feels up to the challenge!  Bring on the cake!

Thank you from the bottom of our hearts for all the prayers and love.  You have carried us through some of the most difficult times imaginable. We are not quite out of the woods yet, but we can definitely see the clearing, and I think it’s going to be a beautiful day.

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Comments

55 Comments

antonov lynn
By antonov lynn
Hearing this new made me happy beyond words!!! Thanks be to God!!!! I am sooo happy for Justin and all of you!!!
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1 person hearted this
Craig Baxter
By Pastor Craig
Ps. 121:1-4 "I lift up my eyes to the hills. From where does my help come from? My help comes from the LORD who made heaven and earth...[He] will neither slumber or sleep!"
Praise God! I cannot imagine how you must feel. We continue to pray as you go through this exciting transition period. I am so thrilled for you.
Jack McDonald
By Pastor Jack
So thankful for the way the Lord has encouraged your whole family through this great report. Praise God for Justin's desire to give his Savior the glory. So happy for you!
Amy Byrket
By Amy Byrket
THIS IS THE BEST NEWS EVER!!! PRAING GOD WITH YOU TODAY!!
anne buckley
By anne buckley
Good Job CHOP, Justin, God and Mom!
Lynn Schambach
By Lynn Schambach
Daryl and I were away for a week and I am just reading this now! This is the best news ever!!!! My heart is singing for you and singing praises to God for blessing your family!!!!!! Thanks be to God!!!! Hugs, hugs, hugs... and more prayers of thanks!!!
Reggie Albert
By Pastor Reggie
Thanking God at Manasquan UMC!!!! God is Good!!
Steve Regn
By Steve
Thank you, Lord.
Amy Mulford
By Amy Mulford
Best news ever!!!!!
stephen wallace
By
This is the best news ever!!! Amy thank you for keeping us up to date. We will continue to keep Justin in our prayers and he "braves his new world."

From all of us next door at the Wallace's.