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My Story

Justin is the middle triplet in a traveling circus family known as the Flying Condolucis!  Seriously, Justin is the greatest kid you could ever meet who just happens to have had cancer, four times, and has every intention of being cancer-free and becoming a pediatric oncologist when he grows up.  He is also a devoted Boston Red Sox fan, theatre geek and dog lover.  This is his journey, thanks for following along...On April 11, 2007 Justin was diagnosed with Acute Lymphoblastic Leukemia (ALL) and fell into the standard risk, pre-b category.  He spent the next 3.2 years in treatment at the Valerie Center at Monmouth Medical Center.On a routine check-up on December 13, 2010, six months off-treatment, it was discovered that had relapsed.  His treatment was moved to Children's Hospital of Philadelphia.  He underwent 1 year of intense chemo, 22 rounds of radiation and 1 year of maintenance chemo.  He completed treatment on March 1, 2013. On June 4, 2013 we got the horrible news once again, Justin had relapsed.  He underwent intensive chemo again which lead to some serious complications but got him to the point where he could receive a bone marrow transplant.  On September 26, 2013 Justin's sister Annie underwent the painful process of retrieving stem cells from her hip bone and later that day that precious gift of live-saving cells were infused into Justin.  He remained in the hospital for 9 weeks and continues with follow-up clinic visit to CHOP.  Sadly, on June 26 2014, exactly 9 months post-transplant a spinal tap was performed and we learned Justin has relapsed again.  He will likely participate in an experimental protocol called CART-19 at CHOP..  "When you pass through the water, I will be with you; And through the rivers, they shall not overflow you.  When you walk through the fire, you shall not be burned, nor shall the flame scorch you." Isaiah 43:2

Feed

Amy Condoluci posted a new journal entry, "Good News, Bad News".

Let’s start with the good news – Justin had a great “staycation” week.  While the weather could have been more cooperative we made the best of it. The highlight ... Read more

Gayl Elam signed Justin's Guestbook.

Justin, praying for better days ahead.Hugs from IndianaGaylGayl Elam C.O.L.E.’s Prayer Team�www.colesfoundation.org� Read more

dennis breen signed Justin's Guestbook.

Praying for some treatment an resolution of the new findings.  Continued prayers for strength for all of you!!! Read more

Janet Moley signed Justin's Guestbook.

Awesome picture! Not so awesome eyeball cancer cells. So sorry to hear this. As always, sending prayers. NEGU! Read more

Marge Ascari signed Justin's Guestbook.

Hang in there Justin!! We're sending positive vibes to you and your family and praying every day. I just read Mr. Joyce's entry, haha!! Stay positive buddy!!! Read more

Sandy Daron signed Justin's Guestbook.

Amy,My heart breaks for yall!! RATS! That darn stuff. I pray for good treatment options. I LUV the pic of Justin. He is such a handsome young man.Love ya, C.O.L.E.s ... Read more

Amy Condoluci added a new photo.

jerry joyce signed Justin's Guestbook.

Hi Justin,Mr.History here ,If your having trouble sleeping I'd gladly come over and we can go over medival Germanic history.That should do the trick. Hang tough! Pax! Mr.Joyce Read more

Amy Condoluci posted a new journal entry, "Kicking Down Doors and Opening Floodgates".

Ten days ago, during my last post, I spoke about the 3 doors we had to choose from.  Well last week we plowed ahead through Door #3.  I  guess you could say we kicked ... Read more

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