My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Julianna Grace Harber and her journey through Craniosynostosis surgery and recovery.
Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.



 

 

Julianna Grace Harber was born on October 23, 2007 at 8:30 a.m. She weighed 7lbs 6oz and had a head full of beautiful blonde hair. Everything went great and then they cleaned her up and handed her to me. I immediately knew something was wrong with my beautiful little girl. The doctors and nurses assured me that nothing was wrong and that she was probably pushed up against a bone for too long in the womb. I trusted them and waited for her head to start to change. That day never came and John and I became more concerned about her head. I took her to her 2 month check up and asked her doctor to look again at her head because I was starting to get really worried about it. He looked at me and said let me send you to a neurosurgeon. I about passed out right there in the office. I thought oh my goodness this is major and she is going to need surgery. He did not tell me the name and said it was asymetric head shape. John then looked it up online and that led us to hundreds of websites about a condition called Craniosynostosis. By the time we made it to the appointment to see the neurosurgeon two weeks later we knew everything there was to know about Craniosynostosis, the type that she had, and what surgery would be performed. I wanted to be prepared and that was a blessing to already know what they were talking about.

We are scared but we know that the Lord has all of this taken care of and we will just put our trust in him.

 

Julianna is now 18 months post-op and is doing great in her recovery after surgery.  Her scar is beautiful and her hair covers it completely.  She still has some holes that are taking their time filling in with bone but other than that her head looks great.   She is a very busy 2 year old and tries her hardest to keep up with her big brothers. 

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Rebecca Harber posted a new journal entry.

Julianna had her post-op appointment very early this morning at 7:30.  So that means that we left Atoka at 3:45 this morning in the middle of all of the storms.  This is ... Read more

Jenna Fowler signed Julianna's Guestbook.

HI Julianna My name is Jenna and I came across your site.  U are an amazing, courageous, strong and determined fighter.  U are a brave warrior, smilen champ and an ... Read more

Joyce Smith signed Julianna's Guestbook.

So very happy to hear the good report about Julianna.....hope things continue to improve. Joyce Smith Read more

Arita Harber signed Julianna's Guestbook.

GOD IS GOOD!!!  So good to hear that you made your trip safely and Julianna has the "go ahead"! Read more

Rebecca Harber posted a new journal entry.

Julianna had her post-op appointment very early this morning at 7:30.  So that means that we left Atoka at 3:45 this morning in the middle of all of the storms.  This is ... Read more

Kim Carpenter signed Julianna's Guestbook.

Hey Becca, so glad ya'll are home!!! Please tell Julianna we missed her in Sunday School & that we are all praying for her. Love in Christ, Kim Carpenter Read more

Arita Harber signed Julianna's Guestbook.

So glad to hear that you are back home and Julianna is doing as good as she is!  I know how "busy" she is and you have your hands full.  Not only her in my ... Read more

Miriam Wilmoth signed Julianna's Guestbook.

I am SO GLAD you posted an update!  Still praying and have been really wondering all morning how you all are.  Love to all of you - and hope that things will be back to ... Read more

Rebecca Harber posted a new journal entry.

I'm writing this on Tuesday night and we have been home since Monday afternoon.  Dr. Kelly was happy with her progress and said that we could go home.  We didn't argue ... Read more

Erica Bell signed Julianna's Guestbook.

Prayers are continuing.  All three of my girls are praying too for sweet Julianna.  May today be a blessing for all of you.  Love, Erica Read more

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