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My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Julianna Grace Harber and her journey through Craniosynostosis surgery and recovery.
Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.



 

 

Julianna Grace Harber was born on October 23, 2007 at 8:30 a.m. She weighed 7lbs 6oz and had a head full of beautiful blonde hair. Everything went great and then they cleaned her up and handed her to me. I immediately knew something was wrong with my beautiful little girl. The doctors and nurses assured me that nothing was wrong and that she was probably pushed up against a bone for too long in the womb. I trusted them and waited for her head to start to change. That day never came and John and I became more concerned about her head. I took her to her 2 month check up and asked her doctor to look again at her head because I was starting to get really worried about it. He looked at me and said let me send you to a neurosurgeon. I about passed out right there in the office. I thought oh my goodness this is major and she is going to need surgery. He did not tell me the name and said it was asymetric head shape. John then looked it up online and that led us to hundreds of websites about a condition called Craniosynostosis. By the time we made it to the appointment to see the neurosurgeon two weeks later we knew everything there was to know about Craniosynostosis, the type that she had, and what surgery would be performed. I wanted to be prepared and that was a blessing to already know what they were talking about.

We are scared but we know that the Lord has all of this taken care of and we will just put our trust in him.

 

Julianna is now 18 months post-op and is doing great in her recovery after surgery.  Her scar is beautiful and her hair covers it completely.  She still has some holes that are taking their time filling in with bone but other than that her head looks great.   She is a very busy 2 year old and tries her hardest to keep up with her big brothers. 


Journal

Notifications

Apr 25, 2011 5:28pm

Julianna had her post-op appointment very early this morning at 7:30.  So that means that we left Atoka at 3:45 this morning in the middle of all of the storms.  This is beginning to be a regular thing for me, traveling to Nashville during tornado watches and thunderstorms.   We got there and back safely and I'm worn out.  

Dr. Kelly said that she looks great and has given the go ahead for her dance practice and dance recital.  That makes Mommy very happy!  I can't wait to see her in her costume up on the stage dancing her little heart out.  

Thank you again for the many prayers lifted up for my sweet girl and for our family.  Julianna did better than I could have imagined.  I was so worried about her being older and not handling it very well but boy was I wrong.  She amazes me everyday with her recovery.

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beccadmk@yahoo.com

Healthcare Facility

Vanderbilt Children's Hospital
2200 Children's Way
Nashville, TN 37232
United States