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NEW SEIZURE MEDICATION AND FUNDRAISER!!

After 10 months of research, we have decided to try an alternative medicine for Julian's seizures not covered by insurance: CBDs. CBDs are a cannabinoid found in marijuana. But, unlike THC, CBDs can not get you high. It is the medicinal part of the marijuana plant. There are certain strains of marijuana that are high in CBD, then the medicine is extracted out of the plant and given to kids orally. I make a tincture for Julian and just put it in his mouth. More and more parents of kids with severe epilepsy are going this route when it is proven that nothing else works for their children. Research is being done in Britain to show that this is an effective treatment for seizures, and parents are reporting anecdotal evidence of marked improvement in their kids after starting CBDs. U.S. studies on CBDs and seizures in children will begin soon in New York and San Francisco.

Since starting Julian on CBDs Aug. 12, we have seen improvement in his seizures and cognition. He has already gone seizure-free a few days, and when he does have seizures they are less frequent and shorter in duration. He is also more alert, energetic, and focused!! His therapist and teachers have reported a vast improvement in his skills and communication since beginning this new medication. Just today, his teacher wrote in his journal: "Julian had an amazing day! When the school secretary asked him, 'How are you,' he responded, 'I am good'! He used a three word sentence! ...We also heard him say 'blue' and 'help'! Great communication today."

We are thrilled the CBDs are working for Julian; however, it is very expensive. This treatment is not covered by insurance and has to be paid out-of-pocket by us. To be able to continue with this treatment, we need to raise funds. We are holding a fundraiser on Friday, Sept. 27 from 5 - 10 p.m. in Truckee, CA. The fundraiser will include music, beer, wine, food, face painting, balloon twisting, hula hooping and a silent auction. The silent auction will run from 6 - 8 p.m.


For those unable to attend the fundraiser, but wishing to donate to Julian's cause, please visit https://www.giveforward.com/fundraiser/vzx2/fundraiser-for-julian to donate online. Please contact me with any questions, or if you are able to donate auction items, at kara_fox@hotmail.com Thank you for your support!


Fundraiser for Julian

Friday, September 27
5 p.m. - 10 p.m.
The 101 Live, 10152 Church St., Truckee

**NOTE: PLEASE DO NOT DONATE TO THIS SITE. All donations made on this site go directly to Caring Bridge and NOT the family. Please use the link provided or e-mail Kara. Thank you!**