Since starting Julian on CBDs Aug. 12, we have seen improvement in his seizures and cognition. He has already gone seizure-free a few days, and when he does have seizures they are less frequent and shorter in duration. He is also more alert, energetic, and focused!! His therapist and teachers have reported a vast improvement in his skills and communication since beginning this new medication. Just today, his teacher wrote in his journal: "Julian had an amazing day! When the school secretary asked him, 'How are you,' he responded, 'I am good'! He used a three word sentence! ...We also heard him say 'blue' and 'help'! Great communication today."
We are thrilled the CBDs are working for Julian; however, it is very expensive. This treatment is not covered by insurance and has to be paid out-of-pocket by us. To be able to continue with this treatment, we need to raise funds. We are holding a fundraiser on Friday, Sept. 27 from 5 - 10 p.m. in Truckee, CA. The fundraiser will include music, beer, wine, food, face painting, balloon twisting, hula hooping and a silent auction. The silent auction will run from 6 - 8 p.m.
For those unable to attend the fundraiser, but wishing to donate to Julian's cause, please visit https://www.giveforward.com/fundraiser/vzx2/fundraiser-for-julian to donate online. Please contact me with any questions, or if you are able to donate auction items, at firstname.lastname@example.org Thank you for your support!
Fundraiser for Julian
Friday, September 27
5 p.m. - 10 p.m.
The 101 Live, 10152 Church St., Truckee
**NOTE: PLEASE DO NOT DONATE TO THIS SITE. All donations made on this site go directly to Caring Bridge and NOT the family. Please use the link provided or e-mail Kara. Thank you!**
Sign Up and Stay in Touch
Be one of the first to know when there’s an update to Julian’s website.