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Juliana’s Story

Juliana was diagnosed with stage 3, group 3 Alveolar Rhabdomyosarcoma on 3/7/07. She had 6 weeks of radiation therapy and 14 rounds of chemotherapy. Julie relapsed on 3/17/11 and received another 12 rounds of chemotherapy and 5 more weeks of radiation therapy. Julie relapsed a second time on 6/5/12 and received 12 more rounds of chemotherapy and 10 more weeks of radiation therapy. She relapsed a third time 3/17/14 and after surgery that removed 90% of the new tumor had five more weeks of radiation therapy and two more rounds of chemotherapy. She is now on oral chemotherapy and will remain on it for the foreseeable future. Please keep Julie in your prayers!




Until Sunday, February 18, 2007 we had no idea there was anything wrong with our beautiful, happy, confident five-year-old daughter. She came into our room that morning complaining about a "bump" under her right arm. The bump turned out to be a swollen lymph node and we discovered the next day at the pediatrician's office that she also had a tumor on her right forearm. After x-rays and an MRI, we received that awful call from the doctor--it appeared the tumor was cancerous and that it had matastisized to the lymph node. The next two weeks went by in a blur as we drove back and forth each day to the hospital for exams, blood work, numerous scans, a biopsy and surgery. Julie's treatment will include weekly chemotherapy for 42 weeks, daily radiation for six weeks and possibly more surgery to remove the tumor after is shrinks.

We adopted Julie from Minsk, Belarus on August 26, 2003 when she was 20 months old. We believe that God placed her in our family for a reason. Had she remained in the orphanage in Belarus, she would not have received treatment for her cancer. Instead, God allowed her to be adopted into an American family where some of the best medical care in the world is within driving distance and surrounded her with many, many loving, caring family members and friends.

Latest Journal Update

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Juliana had IV chemo (temsirolimus) again this afternoon. Her hemoglobin is good after getting a blood transfusion on Thursday, but now her ANC and platelets are falling. Her oncologist decided to cut back her oral cyclophosphamide from 25mg daily to 25mg every other day for the next week to, hopefully, keep her platelets from falling too low to get more temsirolimus next week.

Julie also saw her ophthalmologist last Wednesday and her vision has not changed in the last six months. This is great news as we were worried the radiation therapy she received to her eye orbit would cause her vision to get worse. Julie is feeling good and is looking forward to having a week off of home school next week for Thanksgiving.

Juliana is scheduled to get more IV chemo next Tuesday--please pray that her platelets and ANC don't drop too low to get the chemo.
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Comments

7 Comments

Valérie Van Mol
By Valérie Van Mol
Love and hugs and encouragements and hello kitty smilies for you, Juliana!
Margaret Scherer
By Margaret
Keeping all of you in my prayers. Praying for her physicians also, that God would give them His Wisdom in treating her.
Suzanne Hirtle
By Suzanne Hirtle
Juliana, You are such a brave girl. The spirit of the Lord truly shines through you. I will continue to pray for you as God leads you down His path.
Amanda Gilliams
By Amanda Gilliams
Prayers continuing for your lovely Juliana~
Sloan Walsh
By Sloan Walsh
Much love and prayer for Juliana and for you all~ Blessings
Claudia Ketcham
By Claudia Ketcham
Juliana, I am praying for you!
Kathy Smith
By Kathy Smith
Praying for this precious child❤️❤️❤️