Juliana’s Story

Juliana was diagnosed with stage 3, group 3 Alveolar Rhabdomyosarcoma on 3/7/07. She had 6 weeks of radiation therapy and 14 rounds of chemotherapy. Julie relapsed on 3/17/11 and received another 12 rounds of chemotherapy and 5 more weeks of radiation therapy. Julie relapsed a second time on 6/5/12 and received 12 more rounds of chemotherapy and 10 more weeks of radiation therapy. She relapsed a third time 3/17/14 and after surgery that removed 90% of the new tumor had five more weeks of radiation therapy and two more rounds of chemotherapy. She is now on oral chemotherapy and will remain on it for the foreseeable future. Please keep Julie in your prayers!




Until Sunday, February 18, 2007 we had no idea there was anything wrong with our beautiful, happy, confident five-year-old daughter. She came into our room that morning complaining about a "bump" under her right arm. The bump turned out to be a swollen lymph node and we discovered the next day at the pediatrician's office that she also had a tumor on her right forearm. After x-rays and an MRI, we received that awful call from the doctor--it appeared the tumor was cancerous and that it had matastisized to the lymph node. The next two weeks went by in a blur as we drove back and forth each day to the hospital for exams, blood work, numerous scans, a biopsy and surgery. Julie's treatment will include weekly chemotherapy for 42 weeks, daily radiation for six weeks and possibly more surgery to remove the tumor after is shrinks.

We adopted Julie from Minsk, Belarus on August 26, 2003 when she was 20 months old. We believe that God placed her in our family for a reason. Had she remained in the orphanage in Belarus, she would not have received treatment for her cancer. Instead, God allowed her to be adopted into an American family where some of the best medical care in the world is within driving distance and surrounded her with many, many loving, caring family members and friends.

Latest Journal Update

Another round finished!

March 17th marked a whole year since Juliana's last relapse!!! She had her third weekly IV infusion of temsirolimus Wednesday at the hospital. Juliana's blood counts fell after her first week of IV chemo, but this week they stabilized and didn't fall any further. We also got the results of her thyroid function and echocardiogram tests and both were normal.

Besides being tired, Julie is feeling good. Our family has been busy--we attended two more fundraising events in the last two weeks; one for Believe in Tomorrow and the other for Children's Roads to Recovery--both organizations have been a big help to our family over the past eight years. Also, if you live in the Maryland/DC area, Giant Food's fundraiser for pediatric cancer research will be starting on April 10th--look for Juliana's picture in your local store.

Julie will return to the hospital on April 8th for an exam and blood counts. She will continue to take oral chemo and get mistletoe injections, but is not scheduled for more IV chemo until July. Her oncologist plans to keep her on this chemo protocol for the next few years, as long as she continues to have no bad side effects. She has already beat all the odds by making it a full year without another relapse after already relapsing with rhabdomyosarcoma three times! We appreciate all of your prayers, please keep them coming.
heart
17 people hearted this

Comments

7 Comments

Suzanne Hirtle
By Suzanne Hirtle
Way to Go team!!! Julianna, God has you tight in his arms. You are a trooper!!!! Tammy and family I love the way you pull together.
Bonnie Ermilio
By Bonnie Ermilio
I'm happy to hear that Juliana is doing well with this plan. She's gone through so much in the past years, I'm praying that she continues to do well. I absolutely LOVE the above picture! Juliana is so beautiful and that smile is super! I'm sending LOTS of hugs and prayers to her!!
Shirley Bennett
By Shirley Bennett
Juliana you are so strong so determined and the willingness to fight no matter what! Today you Triumph congratulations sweetheart! Keep up the good work!
Monica Rapalo
By Monica
Yay Juliana!😊 So happy that you are doing so well! You are quite a special young girl! God bless you!
Claudia Ketcham
By Claudia Ketcham
How exciting Juliana! Praise God!
Margaret Scherer
By Margaret
This is awesome news. I certainly will continue my prayers
The Lord is with all of you
Ka'iulani Monderen
By Ka'iulani Monderen
I love that new picture of her😊she's so beautiful inside and out!