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In Honor of Juliana

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Juliana’s Story

Juliana was diagnosed with stage 3, group 3 Alveolar Rhabdomyosarcoma on 3/7/07. She had 6 weeks of radiation therapy and 14 rounds of chemotherapy. Julie relapsed on 3/17/11 and received another 12 rounds of chemotherapy and 5 more weeks of radiation therapy. Julie relapsed a second time on 6/5/12 and received 12 more rounds of chemotherapy and 10 more weeks of radiation therapy. She relapsed a third time 3/17/14 and after surgery that removed 90% of the new tumor had five more weeks of radiation therapy and two more rounds of chemotherapy. She is now on oral chemotherapy and will remain on it for the foreseeable future. Please keep Julie in your prayers!




Until Sunday, February 18, 2007 we had no idea there was anything wrong with our beautiful, happy, confident five-year-old daughter. She came into our room that morning complaining about a "bump" under her right arm. The bump turned out to be a swollen lymph node and we discovered the next day at the pediatrician's office that she also had a tumor on her right forearm. After x-rays and an MRI, we received that awful call from the doctor--it appeared the tumor was cancerous and that it had matastisized to the lymph node. The next two weeks went by in a blur as we drove back and forth each day to the hospital for exams, blood work, numerous scans, a biopsy and surgery. Julie's treatment will include weekly chemotherapy for 42 weeks, daily radiation for six weeks and possibly more surgery to remove the tumor after is shrinks.

We adopted Julie from Minsk, Belarus on August 26, 2003 when she was 20 months old. We believe that God placed her in our family for a reason. Had she remained in the orphanage in Belarus, she would not have received treatment for her cancer. Instead, God allowed her to be adopted into an American family where some of the best medical care in the world is within driving distance and surrounded her with many, many loving, caring family members and friends.

Latest Journal Update

PET/CT Results and Treatment Plan

Juliana had a full body PET/CT scan today and we got the results this evening. In addition to the large tumor in her chest that extends to her spine, she also has a small tumor next to her heart (not in or on the heart) and another small tumor near her port (we can feel this one). Her oncologist has decided to start chemotherapy on Monday. She'll be getting irinotecan (an IV drip through her port for five days in a row for each round), temozolomide (a daily oral chemo drug) and vincristine (IV push through her port weekly). This chemo can all be done outpatient (which makes Julie happy). She will get two rounds of this chemo combination and then we will do another scan. If the tumor does not shrink or if she starts having more neurological symptoms, she will have to have surgery to debulk the tumor. Her oncologist is concerned that the tumor will start compressing her spinal chord (which can cause permanent damage) if it continues to grow (rhabdomyosarcoma is VERY aggressive and can double in size every 3-6 weeks).

Juliana is taking round the clock pain medicine and steroids at home right now. Please pray that the chemo works to quickly shrink the tumors and relieve her pain.
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Comments

13 Comments

claudia wallace
By claudia wallace
Hi Juliana! Always praying for you and thinking of you. Love, Claudia
BJ Miller
By BJ Miller
Juliana, Truly Our Prayers Are With You. John...Our Prayers Are With You, Your Wife & The Rest Of Your Beautiful Family As Well! Praying For God To Give You ALL Strength, Comfort And The Love Of Jesus Every Day.
Suzanne Hirtle
By
Juliana and family,
You are all in my prayers daily. Tammy, I want to reach out and give you a great big hug!
Jennifer Green
By Jennifer Green
Praying that the medicines work to quickly shrink the tumors and relieve Juliana's pain.
Jennifer Green
C.O.L.E.'S prayer team
www.colesfoundation.org/
Nick Gouzoulis
By Nick Gouzoulis
My thoughts and prayers are with Juliana.
Matt Manning
By Matt Manning
Sending love and prayers to all of you.
Anna Wecker
By Anna Wecker
Prayers! 🙏🏻💜
Margaritha Niecolei
By Margaritha from Mexico
Praying daily for Juliana and for the family. May God give you strenght and comfort and help you through this again. She is such a sweet and brave girl, i learned a very important lessons from her, to never give up and keep on fighting. <3
Donna Bequest
By Donna from WI
Juliana and family I pray for comfort and a quick recovery.
Shirley Bennett
By Shirley Bennett
I don't even know what to say my heart aches for Juliana, it seems so unfair. How many times does she has to go through this? I will pray for her! And I will pray for your entire family! God bless you all.