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Juliana’s Story

Juliana was diagnosed with stage 3, group 3 Alveolar Rhabdomyosarcoma on 3/7/07. She had 6 weeks of radiation therapy and 14 rounds of chemotherapy. Julie relapsed on 3/17/11 and received another 12 rounds of chemotherapy and 5 more weeks of radiation therapy. Julie relapsed a second time on 6/5/12 and received 12 more rounds of chemotherapy and 10 more weeks of radiation therapy. She relapsed a third time 3/17/14 and after surgery that removed 90% of the new tumor had five more weeks of radiation therapy and two more rounds of chemotherapy. She is now on oral chemotherapy and will remain on it for the foreseeable future. Please keep Julie in your prayers!




Until Sunday, February 18, 2007 we had no idea there was anything wrong with our beautiful, happy, confident five-year-old daughter. She came into our room that morning complaining about a "bump" under her right arm. The bump turned out to be a swollen lymph node and we discovered the next day at the pediatrician's office that she also had a tumor on her right forearm. After x-rays and an MRI, we received that awful call from the doctor--it appeared the tumor was cancerous and that it had matastisized to the lymph node. The next two weeks went by in a blur as we drove back and forth each day to the hospital for exams, blood work, numerous scans, a biopsy and surgery. Julie's treatment will include weekly chemotherapy for 42 weeks, daily radiation for six weeks and possibly more surgery to remove the tumor after is shrinks.

We adopted Julie from Minsk, Belarus on August 26, 2003 when she was 20 months old. We believe that God placed her in our family for a reason. Had she remained in the orphanage in Belarus, she would not have received treatment for her cancer. Instead, God allowed her to be adopted into an American family where some of the best medical care in the world is within driving distance and surrounded her with many, many loving, caring family members and friends.

Latest Journal Update

Eight Years Later

It was eight years ago today that we found out Juliana had cancer. Eleven surgeries, forty-one rounds of chemotherapy, twenty-seven weeks of radiation therapy, fifty-three blood transfusions, thirty-nine platelet transfusions, sixty-two scans, several hundred injections, nearly one hundred nights inpatient at the hospital, several hundred days outpatient at the hospital and thousands of pills later she is still fighting! Incredibly during an interview last week for a local newspaper, Juliana told the reporter she was just a normal thirteen year old! (www.carrollcountytimes.com/publications/advocate_of_westminster/)

Juliana had an exam, port flush and blood counts yesterday at the hospital. Her counts are holding steady and she is feeling well so she will continue taking daily oral chemotherapy and mistletoe injections three times/week for another three weeks. She will return to the hospital to begin her next round of IV chemotherapy on March 11th.


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Comments

10 Comments

Donna Bequest
By Donna from WI
Juliana,
You may feel that you are a normal 13 year old but you are not! You are filled with gratitude, compassion and a heart bigger than any 13 year old that I have ever known. No you are much more than a normal 13 year old :)
Shirley Bennett
By shirley
Always!
Ka'iulani Monderen
By Ka'iulani Monderen — last edited
Oh my goodness, Juliana, it feels like just the other day you were 8 and I was following you and your journey through YouTube. You have come so far since then and you're such an awesome and beautiful girl:) so happy I have been able to "know" you these past few years! You're just absolutely inspiring:)
Claudia Ketcham
By
Juliana, you are so strong and such an awesome role model!
Suzanne Hirtle
By
Julianna, You are an amazing teenager. I enjoy seeing you from time to time and just seeing your radiant smile. You are an inspiration to many!
Tammy, I enjoyed the article in the paper. I hope you don't mind, I took it yesterday to the clinic. Did you know Erin is leaving too? I am glad to see that you are getting bigger breaks from Sinai!!!
Stay Warm. You are in my prayers.
Francine Smallwood
By Francine Smallwood
She's one AMAZING little girl! God is truly merciful and working great things in your family. 😊
Margaret Scherer
By Margaret
Love these posts, and the good news. My prayers for all of you continue.
Bonnie Ermilio
By Bonnie Ermilio
It's so good to hear that Juliana's counts are holding and she feels well. I'm sending lovely Juliana LOTS of hugs and prayers.
Amanda Gilliams
By Amanda Gilliams
Precious, precious child--always an inspiration...prayers continuing~
John Carver
By
Juliana, Pop Pop and I are so proud of you and the way you have faced all the struggles you've had to fight over the last eight years. You are an inspiration, not only to us, but to anyone who knows you and is familiar with all that you've gone through. You are a very special young lady, and we know God has a special plan for you life. Never quit fighting and never give up! Keep pressing forward in your life to fulfill all the dreams you have. Pop Pop and I want to eat some of the GREAT food you cook when you become a world famous chef!!! Love you so much!!!
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