Dear family and friends, . Today marks one year since we were informed that Judson had Krabbe disease and in honor of his memory we are thrilled to announce the launching of… . www.StoryOfJudson.com . This site is not only intended to carry on Judson's legacy, share his story, and bring awareness to leukodystrophy diseases including Krabbe, but Drake and I also feel called to continue to walk through our journey of loss as openly and vulnerably as possible, believing in the importance of shared experience. . www.StoryOfJudson.com includes never-before-seen video footage of Jud, provides a chronological compilation of all the letters, journals, reflections, etc. that tell Jud's story in its entirety, offers an overview of Krabbe disease, and will now be the home of all family updates & blogs, along with so much more. You can even subscribe for email notifications of new postings! . Therefore, this will be our last post on CaringBridge. We hope you will visit www.StoryofJudson.com ! . Much love...Christina (on behalf of Drake too)
|
