Jude's Journey
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I'm 2!!! :-)

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  TUESDAY, AUGUST 05, 2008 04:40 PM, EDT
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Today is a very special day - Jude is 2!! It's so amazing to be celebrating this day with him. He's such an easy going little guy - content to crawl around, blow raspberries and bless us with some random verbalizations (in his own language, of course!)

We hope to be able to take him swimming on Thursday evening, as it's about the only thing we can think of that he really loves - other than his family. :-)

I look at him and smile and cry all in the same moment. I am more than blessed to be his mommy and I couldn't imagine life without him around! He adds so much to our days - Tobin and Josiah love him beyond words and Tobin loves calling him 'happy' - which he has done since Jude was very little. He will smile at Tobin when he won't for anyone else. Josiah loves talking to Jude and holding him, loves showing him toys. Not a day goes by that Jude will have both boys laughing hysterically at his 'super fast crawling' or the way he loves to play with his toys with his feet! :-)

It's also days like this that his life 'hits home'. When I look at him and realize, he is 2, yet he acts like an 7/8 month old. It hurts and I grieve, and probably always will. I hate to write things like this, but it's the reality that I live in everyday and it's him. And things like a 6 month review with Early Intervention, in which he has regressed in some areas and grown in others since February, but still keeps him at the same development level. I knew it would be like that, but still, it doesn't make it any easier to swallow.

It's also the reality of seizures...we had a week maybe 2 without any noticeable seizures, then on Saturday, Matthew I and saw a slight one, and he's been having one every day (if not more) since. We went ahead and upped his meds again Sunday night, but this hasn't worked, yet.

We are still praying and hoping for God's hand to miraculously touch Jude and heal him. We also, trust God's will for our lives, even if we struggle with it, is best! We are truly grateful for his life and the 2 years, so far, that we've been able to play with, teach, cuddle and love him.

God, we thank for Jude and pray that he will (and we will) live up to his name - to worship YOU - in any and every situation. You make no mistakes and we trust Your guidance and Your love. Blessed be Your name!
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EMAIL AUTHOR
jordanachambers@gmail.com

HOSPITAL INFORMATION
Johnson City Medical Center
TN
United States
 
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