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josh’s Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Josh was born on August 23, 2004 8 weeks early weighing only 2lbs 14oz.  He did great in the NICU, only needed to feed and grow.  At 1 month old our precious bundle of joy was able to go home with us weighing 4lbs 4oz.  Although Josh was small, things continued well until his 3yr check-up where the doctor noticed that he was falling off his growth curve.  Honestly, Josh hasn't grown much at all since then.  We have been followed by Endocrinology since then but have not started using growth hormone yet.  At Josh's 4yr check-up the doctor noticed that his white count was low.  It was re-checked over a couple of weeks and continued to remain low although he showed no sign of illness.  At that point we were referred to Hematology-St. Jude clinic in JC.  For two years Josh's blood has been tested monthly for almost every immune disorder imaginable and has undergone 2 bone marrow biopsy's with still no definite diagnosis.  All the doctors we have seen continue to say Josh is a mystery but they are all continuing to work diligently to find a reason for his weakened immune system.  Despite how ugly Josh's labs have looked for 2 years and his obvious growth disorder, he has been a happy, fun loving, playful little boy who will make your sides hurt with his hysterical since of humor.  In August 2010 it seemed like we went to sleep and haven't woke up from a horrible nightmare.  On Aug. 13 we went to the St. Jude clinic in JC because Josh was swelling and having trouble breathing.  After a urine check the doctor told me they had called a kidney specialist because Josh had a high amount of protein in his urine.  I remember how scary that day was not really understanding what was happening to our little boy.  This is when I met Dr. Wattad, a kidney specialist.  He diagnosed Josh with Nephrotic Syndrome-a kidney disease where his kidney's are functioning normally except they are spilling all the protein into his urine.  So much that he looses all the protein in his blood and that is when he begins to swell.  Josh was given Albumin transfusions to replace the protein in his blood and lasiks to pee out the swelling.  We went home on Sunday, Aug 15 on 7 new medications, one being Prednisone.  This drug is used for 4 weeks to see if it will stop the kidney from spilling the protein.  So far it has not worked.  We were re-admitted to the hospital on Aug. 25 for more albumin and lasiks for swelling but this time Josh did not respond to treatment.  Dr. Wattad told us that in 25 years he had never seen a patient not respond so he contacted Dr. Hunley at Vanderbilt for assistance.  We were transported to Vanderbilt on September 7 and have had very aggressive treatment here.  The swelling is much better here.  The prednisone has caused his face to swell and his tummy is still swollen but we have improved for sure.  Josh is scheduled for a kidney biopsy/bone marrow biopsy on Monday, Sept. 13 which will tell the doctors what type of Nephrotic Syndrome Josh has and what treatment he will need in the future.  Please continue to pray for our sweet little boy and for wisdom for the doctors to be able to diagnose and treat this disease.  We know our God is in control and we lean on Him daily and the prayers and support we receive from you.  We are already thanking Him for the good results we will receive from these biopsy's and we ask that you do the same. 

Update:  Josh has been diagnosed with Schimke Immune-Osseous Dysplasia-an extremely rare form of dwarfism resulting in short stature, kidney failure, bone marrow failure, seizures, strokes and a shortened life expectancy.  Thank you for praying for our family and for Josh.

Josh gained his angel wings on 5/9/2013, surrounded by his family at Monroe Carrell Jr Children's Hospital.  Please continue to pray for our family as we continue this journey in life without our precious little man.  "Stay on the Wall"  Neh 4:20

Latest Journal Update

2nd Annual Little Ironman 5K and our first Little Ironman Mini Mudder

Been a while since I posted on here.  Not sure anyone checks this site anymore, but just in case, I wanted to share the details about the upcoming 2nd Annual Little Ironman 5K and our first Little Ironman Mini Mudder this year.  The turnout for last years event was amazing and helped raise funds to help many families in the past year.  We are prayerful that this years event will do the same so we can continue to meet needs of families in our community facing a medical crisis.  The events will be held on Sunday, August 24th, Josh's birthday weekend!!!  He would be 10 on 8/23.  Please come out and help us celebrate his life with us as his story continues to touch lives.  I can't put into words what it meant to be surrounded by family and friends last year during his first birthday without him.  This does not get easier, every day without him in our lives is a struggle.  We are truly thankful for your continued love and support and by doing so, you are also helping other families facing similar journey's as ours was with Josh and with Phil.  I know they are both smiling in heaven knowing we are continuing to share their stories of faith, strength, courage, and love.
Below are the details and how to register.  Everyone pre-registered by Friday, 8/1 @ midnight, will be entered into a drawing on Saturday, 8/2 for 4 UT Football tickets vs UT-Chatt and parking pass on 10/11. These are awesome seats-Section S, seats 16-19. A big thank you to Tony and Kem Padgett for donating these!!!! Please share and help spread the word. Good Luck!!!!!

!!!!!!!!!!Registration is now open!!!!!!!!!!!!

In loving memory of Josh "Little Ironman" Adcock

Please go to www.philfoundation.org to register for 5K and Mini Mudder and for more details.

New this year for kids
Mini Mudder 3:00 pm
(ages 3-12-heats will be determined by age)

Twelve obstacles over a half mile course will be a challenge to kids of all ages. Course will be on Sulphur Springs Baptist Church property behind church.

Wall Climb 
Rope Swing 
Balance Poles 
Creek Run 

And mud pits throughout are just some of the challenges to be conquered!

This will be a non-competitive, just for fun, mud run and each participant will receive a t-shirt.

Family and friends will have access to the course for cheering and picture taking.

Day of packet pick-up and registration will begin at 1:30pm at Sulphur Springs Baptist Church. Pre-registered participants may also pick up their packet early on Saturday, August 23rd from 10am to 12pm at Sulphur Springs Baptist Church.


5K 5:00 pm

Race day packet pick-up and registration will begin at 1:30pm at Sulphur Springs Baptist Church. Pre-registered participants may also pick up their packet early on Saturday, August 23rd from 10am to 12pm at Sulphur Springs Baptist Church.

Race day parking will be at Sulphur Springs School and shuttles will be running before and after the race.

Rewards for top overall male/female, along with top 3 of each age group (male/female).

Performance wear running shirts provided for all race registrants.
Door prizes are to be given away following the race.
Refreshments and a short devotional will also follow the race.
Wristbands will be on sale for $2.00.
$1.00 photos will be provided by Studio Wick Photography.

Proceeds from both events will go to The P.H.I.L. Foundation, founded in memory of Phil Adcock in 2010, to assist families facing a health crisis.

Thank you to our sponsors:

Carter Trent Funeral Home (Premier Sponsor)
Food City
Sams Club 
Studio Wick 
Century Link
Tri-Cities Logistics
Natural Options Aromatherapy Inc.
Sleep Inn and Suites , JC
The Trophy Shop
A2Z Specialty Lettering
Foster Signs
Washington County Sheriff's Office
Sulphur Springs Volunteer Fire Department
Rustic Ridge Landscaping
James P. Cline, CPA
Johnson City Fire Fighters Association
National Guard
Sulphur Springs Baptist Church
Daniel Boone High School Marine Corp Jr ROTC

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2 Comentarios

Frances Ponder
By Frances Ponder
Please post as you feel you can. There are many of us that visit your site just in case you have posted something. Keep the race going each year. You are bringing attention to a need in our area for support to families that have lost children and those that struggle with health care issues.
Todd Gabrielson
By Todd
It doesn't get easier. As parents we do the very best job we can in making sure our children get the best medical treatment they can get. We are told that the procedures have a high success rate, but when the unthinkable happens causing our little children to slip away we are left with excruciating sadness and profound grief. I understand because 6 years ago our 10 year old daughter, Maria, slipped away the first night home from the hospital where she had had successful surgery to correct her hip impairment caused by her mild cerebral palsy. I decided, like you, to honor her memory by making the world better place for other families. In my case, I developed a website to help support other families in their grieving process. This site is www.soaringonwingsofeagles.org
1 person hearted this