Well scan results are in and not what we were hoping for....but the Lord is our hope and ultimately he holds Joe and us all in his hands whatever our circumstances. Yes, the cancer may be worse but it would be foolish to think that it is more than the Lord can handle. We still cling to him in hope and trust him with Joe and our daily lives. That being said I'll let you hear from Joe himself! Here are the details:
"We got my scan results back today and they were not good.
Aside from the spots in my lungs, which were unchanged, everything else is larger and more active. Additionally there are a number of new sites, both in my lymph system and around previous sites.
So obviously we will have to change up treatment; surgery is not an option and radiation would only be used to control symptoms (ex. target a specific site that was causing discomfort). Also we have already used every applicable type of chemotherapy at this point, so we are going to try using an inhibitor drug, which I will get at the hospital through an IV once every 21 days. The plan is to do three 21 day cycles and then rescan in January. My understanding is that this drug tries to target and shut down different growth receptors on the tumors causing them to shrink and die. As with any drug that we would use at this point the odds of it working aren’t high but there have been some reported cases of my type of cancer responding so there is a reason we are trying it. The good news is that the side effects should be much less than chemotherapy so hopefully my body will get a chance to recover and I should start feeling better.
Obviously this is not the news that we were hoping for but at the same time it’s not surprising. We’ve known from the beginning that this is a rare, aggressive, and highly resistant cancer. The fact that it continues to respond that way is disappointing but it makes sense.
It also changes very little. Since I was first diagnosed I have tried to live one day at a time trusting the Lord and trying to love well…frustrating news on a scan sucks but my response is the same just to keep taking it one step at a time trusting and loving well. I have no idea how my cancer will respond to this new treatment but I know I am excited about possibly feeling better, spending less time in the hospital and being able to be a little more active because the last few months have been brutal physically.
Please keep support coming our way; I know I couldn’t begin to do this without the prayers and love you give. All the ways you care for me, keeps me pushing forward, you all mean so much to me.
I will continue to keep you informed and we will continue forward one day at a time. I don’t know what the future holds but I remain confident of God’s plan and ability to bring good out of this situation. I just want to keep loving well every day. Let me know if you have questions etc.
Please continue to pray for/love/support/do all sorts of other things to me (within reason).