**Welcome to Jorie's Journey! Thank you all for your support through what has already proven to be a rough road! This site serves as an update page for all our family and friends! Don't forget to sign my guest book when you visit!** My story begins when my mommy was 20 weeks along in a routine sonogram to see if I was a Prince or a Princess! At that sono, my parents found out not just that their life was about to be full of glitter and tutus but also, something was different. After a few more tests Mommy & Daddy found out some of my organs below my diaphragm were on the wrong side! It is called Situs Inversus. Long term, this would really have no affect on my daily functions. When I was born I had a little trouble gaining weight and eating like I should. So after I was released from the NICU at Shawnee Mission Med Center, the doctors wanted us to have regular weight checks for a few weeks, just to make sure I was gaining weight. At 11 days old Mommy took me to the doctor for a weight check and also mentioned to Dr. Clement she thought I was a little yellow. They both agreed to monitor the jaundice and see me back in two days for another weight check. When I went back to Dr. Clement on Friday the 13th of September both my skin and eyes had become extremely yellow. Dr. Clement said we needed to run bloodwork and he would call us with results later that day. When he called that afternoon he said I needed to be admitted to Children's Mercy as my Direct Billirubin level was too high. So put her under those lights you say....well the Direct Billirubin level causes a different kind of jaundice. We saw the Liver Team on that following Monday while I was still in the hospital. After explaining to Mommy that I possibly had Billiary Atresia (B.A.), they recommended so many things. Simply put, my liver was unable to get billirubin out due to narrow and nonexistent bile ducts and it was backing up. One of the recommendations was a liver biopsy to confirm the B.A. and that was scheduled for Sept. 30th. We stayed the night at the hospital and the next day Dr. Daniel told my parents the biopsy confirmed what they were afraid of and I would need to have a surgery called a Kasai Procedure. This is my story from the day after my Kasai procedure.
Hello family and friends! Things are progressing quickly to get Jorie listed! She will start her covid vaccine series this week and will be listed after the first of the year!
We are starting the fundraising process through COTA. With this in mind, all updates will now be made through her COTA page. Which means updates here will cease. This page will stay up, but due to the process, COTA requires we only update through that site. They have a blogging option and updates just like this will be available there! Please make sure to follow us there!
Www.cotaforjoriesjourney.com
Love and hugs to all of you!
LETS DO THIS! #betternotbitter #recycledparts #cotaforjoriesjourney
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