×

CaringBridge Is Funded by People Like You

Make a donation to CaringBridge

Honor Jordan with a tax-deductible contribution to CaringBridge today.

Click here to make your donation.

My Story

Welcome to Jordan’s Caring Bridge site. It has been created to keep friends and family updated throughout Jordan’s courageous fight with Cancer and beyond.

  ^Jordan Scott Paganelli^  
     11/14/91 - 11/9/09
Jordan/>/>’s fight began on January 11th 2008 when he was diagnosed with Alveolar Rhabdomyosarcoma/> (ARMS) (pronounced: Rab-doe-my-o-sar-co-ma) stage IV. What’s Rhabdomyosarcoma/> (IE: Rhabdo and/or ARMS)? Rhabdomyosarcoma/> (Alveolar subtype) is:· A very aggressive, highly malignant soft-tissue Sarcoma which arises in undifferentiated muscle cells anywhere in the body. · The most aggressive childhood cancer; however, it strikes adults and teens as well.· Strikes at least 350 kids in the US/>/> each year. · Unlike more common cancers, ARMS is considered rare and thus receives minimal outside funding for research (causing the 5 year survival rate to be low). · Often has spread to other areas of the body by the time a diagnosis is determined. When a disease spreads, it is labeled a “meta-static” disease. · The 5 year survival rate for ARMS patients whose disease has become meta-static is approximately 20%. Did you know? · Each school day, 46 children are diagnosed with cancer.· One in 330 children will develop cancer by age 20.· Cancer remains the number one disease killer of America/>/>’s children- more than Cystic Fibrosis, Muscular Dystrophy, Asthma, and AIDS combined. · Rhabdomyosarcoma/> accounts for approximately 3.5% of the cases of cancer among children aged 0-14 years and 2% of the cases among adolescents and young adults aged 15-19 years.Jordan/>/>’s treatment plan consists of a 54- week compressed Chemotherapy protocol called ARST0431 along with 6 weeks of Radiation Therapy. Thank you for the continued prayers for Jordan/>/> and your loving support of our family! Graciously,The Paganelli’s

Feed

John Laurie Paganelli posted a new journal entry.

Jordan:  Lessons & Reflections on Father’s Day Jordan, I feel your energy on this day—the one they call “Father’s Day”.  For me, each year, it is a ... Read more

Paula Guerrieri signed Jordan's Guestbook.

Heavenly Birthday Wishes to you Jordan! (Yes, I realize I am a day early !)Keeping you , your Mom and Dad  close in thoughts and prayers.Cousin Paula Read more

Colette B signed Jordan's Guestbook.

Thanks for sharing, continuing to lift you in prayer. Surrounding you with Love Light and Blessings. Love and Hugs from Florida. EC6 May the God of hope fill you with ... Read more

Colette B signed Jordan's Guestbook.

Thanks for sharing, continuing to lift you in prayer. Surrounding you with Love Light and Blessings. Love and Hugs from Florida. EC6 May the God of hope fill you with ... Read more

John Laurie Paganelli posted a new journal entry.

Jordan:  Lessons & Reflections on Father’s Day Jordan, I feel your energy on this day—the one they call “Father’s Day”.  For me, each year, it is a ... Read more

John Laurie Paganelli posted a new journal entry.

Jordan:  Lessons & Reflections on Father’s Day Jordan, I feel your energy on this day—the one they call “Father’s Day”.  For me, each year, it is a ... Read more

Archie Wilson signed Jordan's Guestbook.

Lori and John I was thinking of you guys just the other day - unfortunately I was prompted by my friends loss of his 30yo son to Ewings Sarcoma. Whenever I see Jordan's ... Read more

Archie Wilson signed Jordan's Guestbook.

Lori and John I was thinking of you guys just the other day - unfortunately I was prompted by my friends loss of his 30yo son to Ewings Sarcoma. Whenever I see Jordan's ... Read more

Archie Wilson signed Jordan's Guestbook.

Lori and John I was thinking of you guys just the other day - unfortunately I was prompted by my friends loss of his 30yo son to Ewings Sarcoma. Whenever I see Jordan's ... Read more

Show more recent activity