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My Story

Jordan is an amazing girl who was diagnosed with CML (Chronic Mylogenous Leukemia) on February 6, 2006. She was incredibly lucky to receive a bone marrow transplant on June 14, 2006 from an unrelated donor.

In December of 2005, Jordan starting complaining of mild back pain over Christmas break from school. We had recently just purchased some new exercise equipment that she had used and I figured it was a pulled muscle or something. When the condition worsened we made several trips to the Pedi who could not find anything wrong. On December 28, 2005 she awoke at 4 in the morning and the tops of her legs were numb and she was having intense pain in her back. A trip to the ER netted nothing. A couple of weeks later another trip to an Urgent Care facility where they did a back x-ray didn't determine anything either. My unwillingness to let it go, I asked for an MRI to see if she had a ruptured disc or pinched nerve. Feb 1st we had the MRI and that afternoon, her Pedi called urgently telling us to rush to St. Joseph's childrens hospital and see the Director of Oncology. She was admitted that night and diagnosed on Feb 6, 2006 with CML. The first hospital stay was 35 days, 10 days of which was intense induction chemotherapy. The other 25 days were related to a persistent fever. She went back in March for round 2, 8 days of chemo and left on day 8. No more chemo until she received her bone marrow transplant. She started chemo again on June 6, and had the transplant on June 14, 2006. Her donor is unrelated and we found out who he was not too long ago. We are not able to express enough words to properly thank him for his gift of life.

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Katherine Scruggs posted a new journal entry.

Hi Everyone, It's been a very long time since we've updated this site. No news is good news. Jordan continues to do well and is enjoying USF - Go Bulls! She's ... Read more

Katherine Scruggs posted a new journal entry.

Hi Everyone, It's been a very long time since we've updated this site. No news is good news. Jordan continues to do well and is enjoying USF - Go Bulls! She's ... Read more

Katherine Scruggs posted a new journal entry.

Good Morning, It's been a very busy couple of weeks. Jordan had her orientation at USF this past Thurs/Fri and I think she really enjoyed it. She's looking forward to ... Read more

Katherine Scruggs posted a new journal entry.

Good Morning, It's been a busy few days, but everything is going well. It looks like Jordan will get released today to go home. She had some troubles during recovery ... Read more

Katherine Scruggs posted a new journal entry.

Dr. Letson just came out and said everything went great. The surgery lasted just under two hours and she's done. He suggests she'll be able to go home on Friday or ... Read more

Katherine Scruggs posted a new journal entry.

Jordan just got wheeled into surgery. She received a hip block to numb the area, which will last all day. I think the doctors freaked her out a little when they said ... Read more

Katherine Scruggs posted a new journal entry.

Surgery Day! Today is the big day. Jordan gets her hip replaced this morning. We are getting ready to go to Moffit - need to be there at 5:15 for a 7:15 ... Read more

Katherine Scruggs posted a new journal entry.

Hi Everyone, Yesterday, Dr. Letson's office (Ortho specialist from Moffitt) called to give us a date for my hip replacement surgery. The Aleve and Motrin worked in ... Read more

Katherine Scruggs posted a new journal entry.

Hello Everyone, Today marks Jordan's 2 year post transplant anniversary. Wow, how time flies. I can't believe its been over two years since we started this journey and ... Read more

Katherine Scruggs posted a new journal entry.

Hi Everyone, I had clinic on Monday and my counts are doing really good. Dr. P tested my immune system function and it was in the 300's three months ago, and now its ... Read more

Katherine Scruggs posted a new journal entry.

Good Morning! Well, she did it. Jordan graduated from Brandon High School last night at 7pm. I am so very proud of her. She has been through a lot in the last 2 1/2 ... Read more

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