My Story

Johnny is a little boy who has an unknown genetic syndrome, growth issues, megacolon and other health concerns.Because of these issues he is closely monitored by doctors.

His birthday is July 26, 1995. He has a brother Alex ( 9/05/1997) and a sister Kimmy ( 2/18/1993).

Mailing address:

PO Box 586, Custer WA 98240

Journal

Thursday, July 2, 2009 12:35 PM, CDT


Johnny saw the endro dr june 24th. Sadly he didnt get the results he wanted. According to the new bone age study, his body is still over 2 yrs delayed. So the dr feels it will be 2 more yrs until he reaches puberty and says best to let nature takes its time. That means Johnny will be a junior in high school before he starts puberty. He was very upset over this new fact since most other boys have alreayd or is going through it now.
The dr almost made a comment that he felt johnny was fat which really caused Johnny be cry. Johnny had gained 5 lbs and 1/2 inch in last two months. So we left after that.
   All of us went to see transformers 2, it is a great movie. All the kids really enjoyed it. That is so far the only fun thing this summer. His brother had tonsil surgery june 25th and been in pain ever since. Once his brother is healed, hopefully can do some other fun things.

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HOSPITAL INFORMATION

Madrona Medical
4545 Cordata Pkwy
Bellingham, WA 98226

(360)738-2200