07/29/2013

Another busy couple of weeks. HFM finally cleared up after about a week with just a few scabs left to finish healing. Joey has been doing a little better with listening when told "don't" and "stop". Still not 100%, but we will take what we can get!

On Saturday we celebrated the twins' birthday with just a few of their friends and family at Chuck-E-Cheese. Although quite loud and hectic, it was a good time. The kids had a blast! Joey was not a fan of having to wear goggles in the ticket booth, but enjoyed everything else.

This will be his last week of summer school I believe. While it will be nice to let him sleep in a little, I will definitely miss the two hour break three days a week that he was spending in school. It's amazing how much you can get done in just a couple hours if you know that's all you have!

For now, all else is well. We continue to practice new words and following small simple instructions. Progress is very slow, but we have seen changes. He is still having seizures daily which is disappointing. After speaking to another mom on Tuesday whose son also has epilepsy, I have been looking into the Ketogenic diet. It sounds quite interesting and has been around for a long time. At the end of the diet, a person is said to be seizure free. It worked for this other boy, so we may try it as well.  I'll keep you posted when we start this and how it goes.

For now, we will keep doing what we have been and enjoy the remainder of this way too short summer!

Sign Up and Stay in Touch

Be one of the first to know when there’s an update to Joseph’s website.

Get Joseph’s Journal Updates

Comments

0 Replies