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Jocelyn Karen’s Story

Welcome to our CaringBridge website. We've created it to keep friends and family updated about Jocelyn. Get started by reading the introduction to our website, My Story.

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.



As most of you know Jocelyn was born with several congenital heart defects known as Double Outlet Right Ventricle with a Shones variant.  After she was born, she did great but her conditions warranted a series of surgeries to adapt her to her defects.  The first surgery was a BT shunt performed May 2008.  She did wonderfully after that that surgery but it was time for the second surgery, the Bidirectional Glenn.  Jocelyn had this surgery May 13th and the surgery itself went well, however she had some issues coming off heart-lung bypass and had to go on ECMO.  Jocelyn continued to have depressed heart function with moments of improvement but not enough to take her off ECMO.  Her physicians at OU Childrens decided it would be best to move her to Arkansas Childrens Hospital in Little Rock because they were able to provide more options for her, primarily possible heart transplant. 

Jocelyn received her new heart June 12, 2009.  Overall, she was on ECMO 6 days, off for 7 days, on for 16 days, and on again for 2 days after transplant. 

Latest Journal Update

Happy 7th Birthday!!!

Jocelyn is 7 today! I haven't updated in a while and that is a good thing.  Jocelyn is doing fantastic!  She had no rejection at her biopsy this summer and she has even been able to stop taking blood pressure medication.  In fact, at her last echo, her Dr. had to double check it was a transplant patient echo because she said it looked so good.  She is doing great in school and getting taller all the time it seems.

How does Jocelyn celebrate her birthday?  For starters, she is Student of the Month for Compassion at school and celebrated with an assembly.  Also, it's school party day, so in addition to the party they could wear pajamas to school.  For Jocelyn that is a dream come true.  She has requested Pei Wei (we are a little far from her first choice PF Changs).  She wants to go look at Christmas lights (because she's all about the bright and shiny) and Jaxon has convinced her that Starbucks would be a good idea.  Excited that it is her birthday is putting it mildly....if you have seen Jocelyn today, then you know it's her birthday.

Everyday I say a prayer for the family of Jocelyn's donor.  I know for every milestone we celebrate, they are mourning one.  We are beyond thankful for them and hope they know that their child's heart lives on in an amazing little girl.   

Love,  Kim

  
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Comments

3 Comments

virginia sanders
By Virginia Sanders
Our God is an awesome God! Beautiful Jocelyn is proof of that! We are all blessed to know her!
Bonne Karim
By Bonne Karim
Happy Birthday Jocelyn!
Marsha Womack
By Doyal and Marsha Womack
Well Happy, happy, happy birthday Miss Jocelyn. I can't believe you are 7 years old already. And I am so grateful to God that you are doing so well! I know your mommy and daddy and big brother are happy as well. I wish you a great day and a very Merry Christmas and a Happy and Healthy New Year!