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My Story

Winter of 2002 a gym teacher suggested JJ see a neurologist. The Dr. had him do a few things and made an initial diagnosis of Duchenne Muscular Dystrophy. They took a blood test and would send the results to the MDA clinic at Children's Hospital in Milwaukee. Our lives changed forever that day.



J.J was born on Father's Day in 1997; he was the typical boy, getting into everything. His mother and I along with his pediatrician never suspected anything was wrong.

December 10th 2002 was the date to find out the blood tests... His mother and I sat in the office with Dr Jacobson being told the results. We spent a long time in that office, talking to social workers, geneticist consolers, nurses. To this day I still can not recall everything they told us.

At the end of the metting ( it lasted like 3 hours) JJ was given a Chicgo White Sox Teddy Bear, that he still sleeps with.

Right now they are enjoying summer, swimming at the lake, or here by us in the pool.

He handles everything pretty much as good as can be expected. He has done therapys, taken his nasty tasting steroid medicine, with out complaining to much.

His big sister is great help! She tries to help him do things he can not, and will even do things for JJ even if he does not ask for help.

I will be updating later, so keep checking back!

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Jim Miller posted a new journal entry.

I got a Hoyer lift a month or so ago. Found one on craigs listJj has only been here 2 times since the surgery so we havent had the need to use it yet.He is doing great. He ... Read more

Jim Miller posted a new journal entry.

I got a Hoyer lift a month or so ago. Found one on craigs listJj has only been here 2 times since the surgery so we havent had the need to use it yet.He is doing great. He ... Read more

bob martin signed Justin James's Guestbook.

Hey JJ, Just today I began reading your story. When I saw your picture, I thought I was looking at my youngest son when he was your age. He loved to go for walks with ... Read more

Patrick McNeese signed Justin James's Guestbook.

JJ, my prayers and thoughts are with you. You are an inspiration to me. A lot of adults like myself have people we look up to and sometimes call hero's, but in my opinion ... Read more

KATHY MCEACHERN signed Justin James's Guestbook.

HI JJ,       Hope you are feeling better, You dad kept us updated on how  things went in the hospital,,  You are always in our prayers,,,,, Love Aunt Kathy and ... Read more

Jim Miller posted a new journal entry.

JJ has been recovering from his spinal fusion as well as can be expected...He told me on the phone that he can sleep better and that his back isnt as sore.I am in proccess ... Read more

Mike and Jean Miller signed Justin James's Guestbook.

JJ and Family, We hold you up in thought and prayer today as you undergo the surgery.  May it relieve all of your horrible pain. Aunt Kathy did not get the joke on ... Read more

Jim Miller posted a new journal entry.

I know been a long time since an update but I guess I rather not post on here in hopes it will all just go away.But today he is having his spinal fusion, will be a long ... Read more

Jim Miller posted a new journal entry.

Yes very long time since update...Today went to doctors for a check up on his back and hipsSpine curved 7% more So it is at a 27% curve.No surgery is impending, but once ... Read more

Mike and Jean Miller signed Justin James's Guestbook.

Hi JJ, We are so happy to hear that your check up went well. Enjoy the rest of summer..Hope to see you soon. Aunt Jean Say Hi to Jess Read more

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