Diario de Jimmy Moore
Escrito el Jan 11, 2014 6:26pmAs you may or may not know, Jimmy's scalp wound surgery was moved to yesterday.
It ended up being a four hour surgery, which went a little long (long story) but Jimmy did well.
Doctor did one of the more cosmetically appealing options that Jimmy had hoped he would be able to do.
Jimmy was in a crap ton of pain last night and very uncomfortable for a lot of the night, but finally started to relax after his pain meds kicked in.
I stayed with him in the hospital. He just needed lots of help. Didn't feel like a good time to leave. After he got a little bit of relief from his meds, he started to relax and make some jokes with some staffers. I always feel better when the joking happens.
This morning was his first meal since Thursday night's supper.
Jimmy ate a big pancake, sausage, eggs, fruit, apple jacks and OJ. And I'm pretty sure it was the best meal he ever had. He consumed it in what had to be record time.
There were a ton of people in and out of here last night, he didn't get much sleep. But he's getting some good care in a critical time.
I think we'll get to see the wound doctor tomorrow, who did the surgery. He may take the bandage off so we can see what's going on underneath. I may or may not look depending on how much sleep I get tonight.
Jimmy has always been a really quick and a really good healer, so hopefully that continues. He says the pain is pretty constant.
Thanks again for all the support and well wishes!
Jimmy is such a trooper. He makes all of this so much easier.
Escrito el Jan 4, 2014 1:15pmMonday afternoon, Jimmy will be admitted back to The Shepherd Center for a surgery to repair some issues pertaining to the head part of his injury.
We knew this area would probably need some attention down the road after it was first repaired.
So here we are.
They wound doctor at Shepherd will surgically clean it up and see what's underneath the eschar that's on top his head. There's a couple of options -- one involves tissue expanders, looking odd for a few months but in the long term this is the more cosmetically ideal option that Jimmy wants. If there's eroded bone underneath, then a more urgent, less pretty, skin graft option will have to happen. We won't know which option will happen until after surgery.
Because of the seriousness of the surgery, Jimmy will be in the ICU of Shepherd for monitoring for a few days.
I've never seen anyone look forward to eating hospital food like Jimmy is. (Note to self: watch less Frasier and more Food Network.)
I will update as things start happening. Jimmy is nervous about the surgery and what he'll look like after, understandably.
I know he's a very fast healer and usually does well with surgeries. Let's hope this is the same.
Thanks for your constant support!
(Photo: Jimmy getting head and face shaved today in preparation for upcoming surgery.)
A Batch of (Really) Good News
Escrito el Oct 14, 2013 3:51pmToday was Jimmy's trach change day at The Shepherd Center. We're on a 3-month schedule for this.
Jimmy's trach changes have always been extremely painful. He usually won't even let me write the event on our appointment board in his room so he's not visually reminded of it, although it's always looming in the back of his brain.
So he was bummed today when he got up. But, we went.
Because his respiratory and pulmonary staff realize this, they suggested he go with a smaller size trach. Our only concern was that he wouldn't be able to get secretions up.
They said it wouldn't be that much of a difference, and trach changes would be less traumatic. Also, it will help his quality of speech when his stoma heals down the new size, and they said it would be more comfortable for him overall.
Sounds like a win-win. Doctor's were right. Trach change today was less painful, according to Jimmy.
Since it was our annual check-up with our pulmonoloigist, we decided to check Jimmy's vital capacity. Basically that's his ability to draw a breath on his own.
He got tested with his DPS (Diaphramatic pacer) on and no ventilator. His numbers were off the charts good. The RT staff was impressed. His breaths was really strong.
Next the RT had me turn off his DPS so we could test his breath without the pacer's help. So, this is just Jimmy taking deep breaths. No help.
HE DOUBLED HIS NUMBERS FROM A YEAR AGO.
The doctors and RTs were SHOCKED! They said he wasn't the first patient with a high-injury to show this kind of respiratory improvement, but it was rare.
I've talked about this before, how the DPS can be known to recondition the diaphragm.
Looks like it's happening.
So what does this mean?
First step: The doctor wants Jimmy to completely be off the vent. He kinda is. Has been before. Jimmy sleeps on the vent purely for comfort. The doctor wants him to get comfortable sleeping off the vent completely.
Next: He wants Jimmy to come off the DPS. Jimmy will probably get tired while he gets used to this. This step is a big one. But they think he's drawing a big enough breath that he should be fine.
Then: they want him to come back to the hospital to be monitored for a night or two. They want to watch all of his levels closely.
After that: they will decide if he no longer needs the DPS. And, eventually that could lead to his trach coming out. (!!!)
I never ever thought this was a possibility for us.
I immediately asked about his secretions and having to be suctioned. They say once they get rid of the trach, the secretions will start to go away and when he does have them, there is a way for him to get assistance with his "normal" cough to get up what he needs.
Like, it's possible this respiratory thing wont be a forever thing?! WHAT?
We're always so reserved with good news but this feels like REALLY good news. Like, when I asked about the trach coming out one day I got agreeable nods from the doctor and not a bunch of "maybes" or "slow downs."
This is huge news. However, we've got some work to do. Jimmy is going to have to get used to sleeping off the vent again. He had a hard time with this the last time we tried. They said this time it should be easier since he is stronger.
My husband is the shit.