On Dec 23, 2011 it seems time stood still. Our family was suffering from a stomach bug...Jillian's symptoms seemed to linger. So, concerned Josh and I made an appointment with our daughters Dr. The appointment was made...transportation scheduled(our van is also not running) for Friday Dec 23. The Wed prior to the appointment I started noticing what appeared to be small bruises on Jilly's legs and thought..so glad we have the appointment scheduled! Thurs Dec 22 she just seems like she was not feeling well...so again thought...so glad we have an appointment scheduled for tomorrow. Josh awoke on Friday morning to take our sick baby girl to see Dr. Gary Halberstadt. After Dr. Gary took a look at her...thought a possible virus but thought we should go ahead and get some blood test. STAT blood was drawn. STAT results were sent back from the lab to the Dr. Josh was sent back down to Dr Gary for him to discuss that the levels were not good. A wonderful friend transported Josh and Jilly to the ER at Peyton Manning Children's Hospital. Admitted to PICU. Test...blood...rushing nurses. Then, Dr. Razzouk enters our life. He tries to help us as best he can (by this time my uncle and aunt brought me to the hospital) to understand what the possible problems could be. The next four hours would end with a dx of Acute Lymphoblastic Leukemia (ALL). Heartbroken. Since that moment our world has taken on a new normal. We tried to have a Merry Christmas but it just seemed to hard to enjoy anything. Since the dx Jillian has had surgery to put a port a cath in her tiny chest, pulling bone marrow out of her, and a spinal tap. She has had two rounds of chemo at the point of this sites birth. Her blood levels are ever changing which we understand are part of this for now. She has had major ups and major downs which again we understand is to be expected. It is a rollar coaster ride, only we thought Jillian was too little to ride. Turns out as many of us know CANCER has no mercy.
Josh and I are exhausted but are amazed at the efforts of everyone helping our baby. Our other children are well, thanks to granny, friends and family attempting to keep their lives as normal as possible. They understand as best they can what is happening to Jilly and why mommy and daddy have been away. I wish I had better answers for them but I am new at this. We will just continue to the best we can.
I want to ask anyone who will to pray for our Jilly "Bean". We are so thankful to anyone and everyone who has taken the time to do so. Thank you for taking the time to participate in our journey to remission. I will do my best to update you all as quickly as I am able.
The Miller Family