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Three year update

Hard to believe it's been almost three years since Josh's transplant. February 24 will be three years exactly. We just got back from Mayo Clinic, where he had all the standard tests--bone scan, ultrasound, CT scan, blood work, etc.--and everything came back about as perfect as it could be. He didn't have to have a liver biopsy because his monthly labs have been stable for so long. They finally reduced his checkups to every six months instead of every four, so we won't have to go back to Jacksonville until August. They also changed his monthly lab work to every two months.

Now for the slightly bad news. At his checkup in October 2013, he had a colonoscopy and was diagnosed with "mild" unspecified colitis. He met with a GI doc on this visit, who said that Josh will be required to have yearly colonoscopies because he is at a higher risk for colon cancer. The GI doc also put him on Lialda to reduce inflammation. If I remember correctly, about 80% of people with PSC also have some form of colitis, usually ulcerative colitis. So it's not an atypical diagnosis, but it's still not something you want to hear.

Other than the colitis, Josh is about as healthy as you can get for someone who had PSC and cholangiocarcinoma just three short years ago!

In other news, we relocated to Augusta, GA, in May 2013, due to a new job opportunity for Josh. We bought a house in Evans, a suburb of Augusta, and we both really enjoy the location. I work from home, and Josh's job is only three miles away. The biggest negative is that our families are in the Charlotte area, so we don't get to see them as much as we used to. And having had several nieces and nephews born in the last year or two--and another one due in August--that's a pretty big negative! Charlotte is about three hours from Augusta, so it's not a long trip; we just have to plan things in advance. On the plus side, we're only four and a half hours from Jacksonville now.

Don't forget: If you aren't currently registered as an organ donor, please register today by visiting And don't forget to tell your loved ones you want to be an organ donor.

Jenny and Josh