Josh Honeycutt's Journal
Three year update
Written Feb 6, 2014 11:20amHard to believe it's been almost three years since Josh's transplant. February 24 will be three years exactly. We just got back from Mayo Clinic, where he had all the standard tests--bone scan, ultrasound, CT scan, blood work, etc.--and everything came back about as perfect as it could be. He didn't have to have a liver biopsy because his monthly labs have been stable for so long. They finally reduced his checkups to every six months instead of every four, so we won't have to go back to Jacksonville until August. They also changed his monthly lab work to every two months.
Now for the slightly bad news. At his checkup in October 2013, he had a colonoscopy and was diagnosed with "mild" unspecified colitis. He met with a GI doc on this visit, who said that Josh will be required to have yearly colonoscopies because he is at a higher risk for colon cancer. The GI doc also put him on Lialda to reduce inflammation. If I remember correctly, about 80% of people with PSC also have some form of colitis, usually ulcerative colitis. So it's not an atypical diagnosis, but it's still not something you want to hear.
Other than the colitis, Josh is about as healthy as you can get for someone who had PSC and cholangiocarcinoma just three short years ago!
In other news, we relocated to Augusta, GA, in May 2013, due to a new job opportunity for Josh. We bought a house in Evans, a suburb of Augusta, and we both really enjoy the location. I work from home, and Josh's job is only three miles away. The biggest negative is that our families are in the Charlotte area, so we don't get to see them as much as we used to. And having had several nieces and nephews born in the last year or two--and another one due in August--that's a pretty big negative! Charlotte is about three hours from Augusta, so it's not a long trip; we just have to plan things in advance. On the plus side, we're only four and a half hours from Jacksonville now.
Don't forget: If you aren't currently registered as an organ donor, please register today by visiting http://donatelife.net/register-now. And don't forget to tell your loved ones you want to be an organ donor.
Jenny and Josh
Two year update
Written Feb 15, 2013 11:19amHi everyone,We just got back from Florida, where Josh had his two-year checkup. All of his tests were completely normal. He didn't even have to have a liver biopsy, which is usually standard at the two-year checkup. He is doing remarkably well and the doctors are very pleased. He will still have to have checkups every four months for the next year. Most people transplanted due to PSC would only require once-a-year checkups after this point because the chances of the PSC coming back after the first two years are reduced. The cholangiocarcinoma requires additional scans more often, so if anything does pop up it can be caught early. But all of Josh's lab work was normal, including his tumor markers, and the various scans showed no signs of recurrence.We also visited Disney World and SeaWorld this time while we were in Florida. Josh had no problems walking around the parks all day and riding the roller coasters. We had an amazing time!If you aren't currently registered as an organ donor, please register today by visiting http://donatelife.net/register-now. And don't forget to tell your loved ones you want to be an organ donor.If you live in NC, you can register for a Donate Life license plate now by visiting http://www.donatelifenc.org/content/donate-life-license-plate. They just need a few more orders before the plates go into production!Love,Jenny and Josh
Written Oct 3, 2012 3:59pmCan't believe it's been almost a year since I updated this blog. I'm not sure if anyone even still visits, but just in case, I thought I'd post a quick update.We just got back from a quick trip to Mayo, where Josh had his four-month cancer screening. All of his scans and blood work looked great. His tacrolimus (anti-rejection medication) level was a little low, so they upped his dosage slightly.They also told us he has a stress fracture in each knee. He started running on the treadmill about three weeks ago, and by the third day his knees were hurting pretty badly. He stopped exercising to see if it was just soreness, but the pain lasted for two weeks. When he had his CT scan this past Monday at Mayo, his knees lit up on the images. They took a set of x-rays and confirmed stress fractures that are still healing. So Josh was told not to run anymore. He can walk, bike, or swim, but only after resting for two more weeks.It's hard to believe it's been 20 months since his transplant. Not a day goes by that we don't think about the donor and his or her family. Please keep them in your prayers, and please register to be an organ donor if you haven't already.Love,Jenny and Josh