My Story

Welcome to Josh's CaringBridge website. This is where we'll post the latest info about his diagnosis of primary sclerosing cholangitis (PSC) and cholangiocarcinoma. Josh is 38 years old, married to Jenny, and lives in Georgia.



In May 2010, Josh was diagnosed with Primary Sclerosing Cholangitis. PSC is a disease of the bile ducts. It can lead to liver damage and, eventually, liver failure. The doctor said Josh has a "severe case of PSC" and that he's probably had it for years.

PSC is not caused by alcohol. In fact, Josh has hardly touched alcohol his entire life. Doctors don't know what causes PSC, but they speculate that it is an autoimmune disease.

On July 6, 2010, one day after his 35th birthday, Josh was also diagnosed with cholangiocarcinoma, or bile duct cancer. This is a rare cancer (2 out of 100,000 people), but people with PSC have a 10 to 15% lifetime risk of developing the cancer.

He will be undergoing treatment at the Mayo Clinic in Jacksonville, FL. Liver transplant is the only known cure for both PSC and bile duct cancer.

UPDATE: Josh received a new liver on Feb. 24, 2011. The pathology report showed that all of the cancer was removed successfully!

Feed

Jenny Honeycutt posted a new journal entry, "Three year update".

Hard to believe it's been almost three years since Josh's transplant. February 24 will be three years exactly. We just got back from Mayo Clinic, where he had all the ... Read more

Rebecca Ruehl signed Josh's Guestbook.

Love to hear the updates and that everything is going to great.  And thanks for adding the donor registry info.  That is just so important to the thousands who might/do ... Read more

gail broome signed Josh's Guestbook.

Congratulations!  And thank God from whom all blessings flow!  Thanks for the update!   Read more

Anne Ackerman signed Josh's Guestbook.

Charles and I celebrate with you both What a journey of faith .Thank you for sharing it with us. We hope to see you at the June NC reunion love Anne and Charles Read more

John Dancoff signed Josh's Guestbook.

Awesome news!  Prayers continue to be answered. Keep up the good work. John Dancoff from Holy Cross Lutheran Church Read more

Jenny Honeycutt posted a new journal entry, "Two year update".

Hi everyone,We just got back from Florida, where Josh had his two-year checkup. All of his tests were completely normal. He didn't even have to have a liver biopsy, which ... Read more

Rebecca Ruehl signed Josh's Guestbook.

Yay, such happy news.  I've read your posts from Southern Illinois (my husband has PSC) and I'm always encouraged when I hear of a happy story.   Enjoy the next 70 ... Read more

eloise hudspeth signed Josh's Guestbook.

Great  to hear this. Take it easy on the knees. Hope to see you at the renuion. Read more

Charles Ackerman signed Josh's Guestbook.

Glad things are going so well. Missed you at the reunion in June. Hope to see you in November at the reunion. Love, Anne and Charles Read more

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