Jessica Rose
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In December of 2006, Jessica was diagnosed with Stage IV Neuroblastoma. Jessie lives in Florida with her Mommy & three big brothers. With faith, love and hope we know we can get through this together. We love visits from family & friends and invite you to share in our journey.

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  TUESDAY, JULY 22, 2008 08:56 AM, CDT
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Hello Everybody,

It turned out that Jessica could not travel to NY with us last week because her counts were still pretty low and certainly not worth taking the risk of her getting ill and ending up in the hospital in NY. I went with just the boys so I canceled her PET scan and it will take place during her next test workup which should be before the end of September. Jessie is feeling better and her counts are starting to rise again. Her last round of chemo during the first week of July was cut short because her liver enzymes were very high. This was due to one of the meds she was one so the doctors advised to stop the chemo and remove one of her oral meds as well. Her liver enzymes came down as a result.

I took Jessie to see WALL-E and she really liked it. Now, she wants to see the movie, Mama Mia, and has been listening to the ABBA soundtrack. She loves the song, Dancing Queen…what girl doesn’t? Yesterday, she watched Phantom of the Opera…the musical version that came out a couple of years ago. She watched it twice and we also have the soundtrack CD and she listens to it in the car as well. I told her the show is coming to Tampa’s soon and we’ll go see it just like when we went to see Lion King on stage which she still talks about.

Recently, we got the Wii Fit game and for those of you not familiar with it, it’s a fun way to exercise. It has options for sports games and different types of exercises. Jessie has been using it almost every day. She loves the jogging and actually beats me every time. She keeps a steady pace and wins the race…I’m huffing and puffing by the end. I always hated jogging.

Jessie is looking forward to a few vacation days with me and her brothers in about two weeks. We’ll be going to the beach in St. Pete for about 5 days. Afterwards, she’ll be starting another round of chemo so for the next couple of weeks, she should be feeling pretty good.

That’s about it for now. I will update more as soon as I get the chance. Thank you all for your continued support and prayers!

Love, Maureen & Jessica

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HOSPITAL INFORMATION
Memorial Sloan Kettering
1275 York Avenue
Manhattan, NY 10021
United States
212-639-2000