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My Story

 

January 29th 2008, Jesse was diagnosed with a brainstem glioma. Due to the location of the tumor resection was not an option. Radiation treatment has shrunk the tumor considerably. The mass is considered cold, and we will monitor every 3 months. Presently Jesse is full of energy, full of life,  and we cherish every moment together.

Jesse is a two and a half year old boy from Sarnia, Ontario, who can light up a room with his smile, and bright blue eyes. His favourite thing is the Teenage Mutant Ninja Turtles, particularly Raphael. He likes to pretend he is "Raffy". Jesse also enjoys watching movies, play fighting ninja turtles with his brother Jett, colouring, and going for treats.

In Jesse's first year he showed virtually no early signs or characteristics of this condition , but in his second he did not progress with his physical ability milestones. Physiotherapy, and increased exercise did not produce any benefit, so this led us to believe maybe there was something neuromuscular causing the issue. Persistence to doctors for an MRI, is what finally gave us our answers. The most horrific phone call a parent could ever receive "your son has a brain tumor". Removal was not an option, due to the severity of the location and the vital nerves it surrounds.

Jesse needed emergency surgery following his MRI, to reduce the pressure that was built up in his brain, and to do a biopsy of the tumor. A shunt was inserted to permantly relieve any pressure build up in the brain. A few days later Jesse underwent his second surgery to install a mediport in his chest to allow easier access for intravenuous medications or blood transfusions to follow. The pathology report determined that the cancer cells are of a low grade, which should thereby be less aggressive.

Jesse is received his medical attention at the St. Johns Hospital in Detroit MI, through the Childrens Oncology Group. Everyone was extremely kind, informative, considerate, and compassonate to our family and son. Jesse received radiation therapy, in conjunction with a clinical trial phase II infusion drug to enhance the effects of radiation to that specific site. Our hopes and prayers are that the tumor can shrink enough, that removal would be a possibility. The 30 Radiation sessions were completed March 18, and Jesse was home permanently from Detroit. In 4-6 weeks a second MRI was be done to determined the effects of his treatment.

The tumor had shrunk by 80%, but removal was still not an option due to the severity of the location. Today the tumor is considered dormant, and we do not know when it may decide to grow again. Chemotherapy may now be an option if it does. We can beat this, Jesse can do it.

We are all very positive here at the Morningstar household. We laugh, we cry, and we try to carry on as normal life as possible. Every day means so much more than it once did. We thank you all for your support and prayers we could not hold it together without you.

Feed

Jason Morningstar posted a new journal entry.

Its been a long while.  Life is very good though.  As the song suggests "let the good time roll", and that is what we do.  Its hard to look back sometimes.  ... Read more

Jenna Fowler signed Jesse's Guestbook.

Hi Jesse I love your new pic on your page.  How are you doing?  I love that smile of yours.  I will be storming heaven with prayers for you. Poetry: Never give up ... Read more

Jenna Fowler signed Jesse's Guestbook.

Hi Jesse You will be in my prayers, and I will continue to keep you in my thoughts, What is courage? What defines a courageous act? It is said that the brave and ... Read more

Marg Lennan signed Jesse's Guestbook.

Hi Jesse and Family, I haven't written in a long time---do hope you are all fine. Hope you and your big brother are still playing hockey.  It's a great sport! You will ... Read more

Jenna Fowler signed Jesse's Guestbook.

Hi Jesse, How are you?  I hope you are doing well, and enjoying the hockey season?  Are you excited for christmas?  I am.  I am thinking and praying for you. ... Read more

Renee Simmons signed Jesse's Guestbook.

Hey Jesse & Family, How are you? Are you getting ready for Halloween? How is big brother Jett doing? I bet you two kept super busy over the summer with your ... Read more

Marg Lennan signed Jesse's Guestbook.

Hi Jesse and Family, L I love reading the "news"about you, your brother and family. It's wonderful to read you are doing well. We are all praying for you. ... Read more

Jenna Fowler signed Jesse's Guestbook.

Hi jesse My name is Jenna and i came across your site.  U are one amazing special child.  U are a brave courageous fighter and My hero!  U will be in my thoughts and ... Read more

Brodie Whitelaw signed Jesse's Guestbook.

Hey Star, We read all your updates, great to hear things are going well and things have settled. Sorry we didn't get in touch this year at Christmas, All the best, Your ... Read more

Marg Lennan signed Jesse's Guestbook.

Hi to the Morningstars So happy to read about you--It sounds like you boys are really growing and doing very well---with sports and school. We wish the best for Jesse ... Read more

Maureen Smith signed Jesse's Guestbook.

Wow, talk about miracles.  You are a truly amazing family, all smiles and so much fun.  Keep up the good work and just be kids for as long as possible.  Praying for you ... Read more

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