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Jesse’s Story

Happy Mail can be sent to:

Jesse Green
517 Morelock Schoolhouse Road
Westminster, MD 21158


 Jesse is a special gift sent to us from The Lord at 16 months old. To learn more about Jesse you can Read My Story.

Jesse is a very precious little boy, that we adopted at 16 months old and became his forever family. He was born on 5/4/1999 and is now 14 years old. We also have five older biological children(ages 30, 27 and 23 yo triplets) and two other, younger adopted children(ages 11 and 8 that are also disabled, one with Autism and one with FAS). Jesse has severe Fetal Alcohol Syndrome(FAS) and Fetal Dilantin Syndrome, that has caused him multiple defects and health problems including a cleft palate, tethered spinal cord, spina bifida occulta, congenital heart defects, congenital hip dysplagia, mental retardation and bladder atrophy. Almost every system has been affected. Jesse also has Autism, mild CP, epilepsy, is G-tube fed, has chronic lung disease and is on oxygen at night. His daily treatments include many meds, the Vest, cough assist and nebs. He has had many surgeries to correct his right leg, both hips ,spine, heart, g-tube/nissen, bilateral hernia repairs, pyloric stenosis and port placement just to name a few. At the end of August '07 Jesse got sick with double pneumonia and was admitted at Johns Hopkins Hospital. He very quickly turned for the worse on Labor Day and went into cardiac arrest 3 different times. Jesse was diagnosed with Adenovirus and had developed ARDS (Acute Respiratory Distress Syndrome). The Dr came in to tell us that they did not think Jesse was going to make it through the afternoon and that we needed to get our family in to see him. They resuscitated(hand bagged) him, for about 6 hours and then finally they were able to put him on an oscillator ventilator with Nitric Oxide and by the many prayers lifted up to our Lord and Saviour Jesus Christ, and the wonderful staff in the Johns Hopkins PICU, we still have our precious little man and he is the love of our lives. Since then, he has been very in and out of the hospital with lung problems, spending many weeks, even months at a time.

*update-8/09*Jesse has spent 40 weeks inpatient for lung infections since August '07. He also needed a nissen done to try and protect his lungs from refluxing/aspirating. Please pray that he stays healthy through this upcoming flu/viral season.

*update- 01/10*Jesse's, recent CT of his lungs, now shows that he has mosaic perfusion, with probable Bronchiolitis Obliterans, along with worsening of his underlying Chronic Lung Disease. He is now steroid dependant due to adrenal insufficiency, which has caused him to have new problems with increased blood sugar levels and has been diagnosed with hyperglycemia.

*update-06/11*For the most part Jesse has had a remarkable winter only spending 2 times inpatient, both for respirtory problems. He has had more of a struggle with his intestines than anything this year starting back at his first admission of the year in 10/10 after being on a course of IV antibiotics so that has been the most recent challenge.

*update-7/12*Jesse had his 6th or 7th tetherd spinal cord surgery and was in the hospital from April 30th to June 21st after getting very sick with his lungs from surgery and his gut not working and had to get a G/J tube placed. He is now dependant on IV TPN for nutrition until he can hopefully start J-tube feeds.

 *Update- 10/1/12*Jesse had a J-tube procedure, 2 days post op he devolped ARDS a second time from severe pnuemonia and now is on the vent fighting for his life.

*Update-12/5/12*Jesse is now home trached and totally vent dependent. Please pray for protection from all flus and virus's.

*Update-2/11/13*Jesse is now also totally TPN and lipid dependent via through his port along with being vent dependent. He has been spending as much time inpatient as he has being home since October 1st. Please continue to pray for healing for our sweet boy.

*Update-7/20/12* Jesse has been home and out of the hospital since the beginning of May except for his excitement with his Trach coming out two weeks ago and we couldn't get it in so it bought him a Medivac trip down to Hopkins from our local ER. Jesse has been getting home/hospital teaching for the month of July then he will be off until school resumes the last week of August. We are trying to get his Tobi Nebs approved so we can keep him out of the hospital so please pray we get them approved. Other then that Jesse has been doing well. He got his new braces and is walking with assistance short distances. This will make his lungs stronger. Thank you for your faithful prayers!!

Latest Journal Update

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Inpatient day 3:  Not a lot going on today since it is a Sunday. Jesse will have an ultrasound tomorrow to rule out a clot since his port is not drawing back blood. They are stil using it for his IV antiniotics. They said today he has been building up pneumonias on top of each other especially in his left lung. They have increased his hypersal nebs and added dornase to help bring up the secretions. Thank you for all of your prayers and support. 
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Comments

8 Comments

Jeanne Leder
By Jeanne Leder
I'm so sorry about all this! We continue to pray for Jesse, for healing, his port - the whole situation. The new picture is cute!
God be with you and bless you Jesse!
With love in Christ,
Jeanne <><
Jennifer Green
By Jennifer Green
Praying for both pneumonias to clear ASAP and for the port to begin to draw and that there is no clot.
Jennifer Green
C.O.L.E.’s Prayer Team 
www.colesfoundation.org
Lynn Worley
By Lynn
The Lord knows all the whys. All things are in His Hands! Lifting up prayer!
Proverbs 3:5-6 Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths.
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Sarah Gouzoules
By Sarah Gouzoules
I'm sorry to hear Jesse is in the hospital. Hopefully you all will get good news tomorrow from the ultrasound. Night!! Sarah C.O.L.E'S Prayer Team www.colesfoundation.org
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Bethany Lovegrove
By Bethany Lovegrove
Praying he can heal quickly and go home soon.
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Princess Erika
By Princess ERIKA
Hey Jesse great picture. (You don't even look sick) Sorry your in the hospital. Praying you will be feeling better and up and out of there quickly. I sure hope they get answers for your port with the ultra sound tomorrow.

God bless you and family.
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Amy Raezer
By Amy Raezer
Continuing to pray for you my best little buddy in the whole wide world!! Hope you are feeling better very down so you can go go home to all your movies and babies!!

Love and Prayers,
Amy
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Beverly Reed
By Beverly Reed
Gracious God,

We thank you for your continued provisions for Jesse and for attending to his needs every second, day and night. Continue to intervene in the meds, and treatments, and we pray for visible progress in the days ahead. b
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