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latest news

I am so bad at updating this site. I do almost daily updates on Facebook but forget that not everyone has access to it. Jayden has been one tough little boy. In the last few months he has had 2 hospitalizations with fevers. He has another fever right now which we are keeping an eye on, hoping it doesn't go up and require another hospitalization. Anytime his temp goes up to 101.5 its an automatic hospitalization. I'm sure over the next 3 years of treatment we will have lots of these. He has an MRI next week to check on the back tumors, I am so nervous of this as the last MRI showed no change. I am hoping that putting him at high risk with stronger chemo treatments was the answer to fighting the tumors, as they are a rare presentation of Leukemia. When Jayden is feeling good he is doing great. He has began to walk again, getting up to play a lot. I love seeing him play and enjoy life again. I try to let him be a kid as much as I can as so much of his life is not what a kid should know. I will give a better update next week when we hear about the MEI results.