Thursday, June 04, 2009

A Summer Update

Hi everyone,

Sorry for the long delay in writing an update.  It’s been about 4 months and things have started to calm down (on all fronts) for the summer . . .

Since the last update, Jason has finally gotten to a stable range with his numbers and medicine.  His liver enzymes look good and are finally in an acceptable range.  And his mouth pain (from GVHD) still comes and goes, but overall is stable.  For the next three months, Dr. Solomon wants to keep Jason “as is” with consistent lab numbers each week before beginning to taper him further off his medicine.

Jason did have another 4-hour IGG (live blood) Infusion on Tuesday to boost his immune system.  He’s had these numerous times and knows the drill . . . a long morning at the clinic and then a few days of feeling “blah” afterwards.  He takes it in stride and far better than most of us would.

Dr. Solomon did give Jason & Emily some encouraging news – the OKAY to go out to eat during off hours and preferably to a place with an outside porch type atmosphere!  This will be his first time since the Summer of 2005 that Jason’s been out in public.  Of course he has to be aware of his surroundings and still cannot go to office-type or other public venues (Home Depot, Target, the mall, grocery stores, etc.).

For the summer, Jason & Emily plan to spend time at the lake and have a couple of beach trips scheduled with close friends to Edisto Island, SC, and Panama City Beach.  And then there are always family get-togethers, dinners, and birthday parties.  Time will fly!

Thanks for checking in with Jason, and we wish everyone a safe and enjoyable summer!

~Stephanie