Jared Kerr
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Jared was born on March 22, 2004. Jared was diagnosed on March 26th, 2007 with Metachromatic Leukodystrophy (MLD). He had an unrelated cord blood (stem cell) transplant at Duke University on May 30th, 2007. We were released home to NJ on Nov. 17th. There is NO CURE for MLD and it is progressive. This treatment is meant to slow or possibly stop the progression of the disease.

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  SUNDAY, SEPTEMBER 07, 2008 10:55 AM, CDT
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So Jared has pneumonia in his left lung. We had a scary episode last night. They did a second x-ray at 3:30am because he spiked a big fever (39.8) He was having a lot of trouble breathing and needed to be put on something called vapotherm which is high flow oxygen therapy. It forces the air into his lungs so he does not have to work so hard to breath. I made them stop that because it somehow works with water and the water kept dripping into his throat causing him to cough and gag. He did well for awile on regular o2 but again is struggling so he is back on the vapotherm. The respiratory therapist fixed it so not so much water is building up and dripping into his throat. If we don't do this then he needs to go on the Bi-Pap. He seems pretty comfortable right now and I am still getting smiles! He is on 2 different antibiotics and hopefully we will see improvement in 48 hrs. I will update soon. Thanks for checking on Jared.
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EMAIL AUTHOR
kath30@comcast.net

HOSPITAL INFORMATION
Duke Pediatric BMT Program
2400 Pratt St.
Suite 1400
Durham, NC 27710
United States
 
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