Well it has been a long long time since I have updated. Thereis so much going on with work and life :)-- Jard as of now os in good health no serious problems. He still has no speech and I am starting to wonder if he ever will. I found out that I was Pregnant in february and we went throught some seriouse Pre-Natal testing to see if the Baby was infected or a carrier of Sanfilippo Syndrome. THANK GOD He is not. We are having a baby Boy in Ocotober!! Jared doesnt understand that he is going to be a big Brother But I am sure he will be very happy once the new little guy arrrives. WE also recently put Jared on a pure for m of Genestein from a doctor in Poland and he seems to be doing well with it. This month has been very hard for me since one of our Sanfilippo Children Passed away ANDREW JUMP Andrew was one of te first Boys with  the exact type of Sanfilippo Syndrome taht I found online. His Caring bridge site helped me throught the hardest part of Jareds Diagnosis. I admired her for her strength.  He recently passed away at the age of 11. This scares me beyond belief and I only wish to hold time and not let Jared get any older in fear of that terrible stage . As for now jared is very happy and loving he gets so cuddly at times and really shows a lot of affection lately. We will be going to a Big Conference in December to DISNEY WORLD and we will get to meet lots of MPS families. I am very excited to meet all of the families. I feel so alone  all the time because no one really understands the pain we as parents feel for our children. It will be a great way to feel almost normal for once.  I am both Happy and Sad at this time being that I am carrying a beautiful Child  But I am in a daily fight against this Disease. I know that Jared is feeling good for now and thats all I can ask for. ---REIA