Jared Connor1
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Welcome to Jareds site. Jared was Born on Dec 7th 2004. At the age of 2 he was diagnosed with a rare genetic disease called Sanfilippo Syndrome. There is currently No Treatment or Cure for this disease only Hope. Jared is a Beautiful Boy . His love will touch all who know him.

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  TUESDAY, JUNE 03, 2008 07:03 AM, CDT
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HELLO Friends!, The Benefit for MPS is this weekend! I hope to see you all there and make sure to bring your Car for a nice old fashioned Wash! This event should be very laid back and fun. It will take place at FLEX Fitness parking lot in Saugus MA located on Lincoln Ave. I have a couple MPS families coming so we are so excited. Jareds Last day of school is June 10th I cannot believe time flew by so fast. He will be in Summer School as well to stay consistent with all his Therapies. We still have not opened our Pool yet we are working on it :) Jared will love it I think it will help his Joints and he loves water .--Thanks for checking in hope to see you on Sunday June 8th.--REIA
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WE WOULD LOVE TO HEAR FROM ALL OF OUR FRIENDS AND FAMILIES! YOUR SUPPORT HELPS ME GET THROUGH SOME OF THE TOUGHEST DAYS<
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EMAIL AUTHOR
lilphunk2@aol.com