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James’s Story

Our "Little Man" James entered the AMC emergency room on 4/12/10 with a very rare strep type A blood infection, of which we had no idea as his pediatrician and first resident to see him said it was just a "stomach virus".  He decompensated very quickly once we entered the ER and it became clear he was in kidney failure, he was septic, and was suffering from toxic shock all due to the strep group A entering his blood stream.  Normally this bug would only result in a typical "sore" strep throat, however, if it finds it's way into the bloodstream it will wreak havoc.  Unfortunately, James' left arm and right leg were amputated due to the damage done by the disease.  An MRI revealed he had a stroke to the basal ganglia and suffered hypoxia of the cerebellum.  The journey has been very harrowing, trying, & scary for James & his family.  We have such a long road ahead of us, and are hoping for a full recovery.  Our friends at AMC have been outstanding, most definitely saving his life for which we will always be grateful.  James has a long road for recovery but our journey has just begun, please continue to pray for our "Little Man"

Latest Journal Update

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This has been a busy month for James.  Christmas was magical, just before Christmas his sister &  his cousins embarked upon another adventure on the Polar Express.  I think that the Polar Express is the one adventure that he looks forward to all year - he loves it.  We made our journey from the Saratoga station to the North Pole & back while reliving the story of the Polar Express with all its' characters.  All had a wonderful time with James probably enjoying it most.  That was the warm up for Christmas which seemed to come & go very quickly this year.  None the less all the kids were so excited in anticipation of Santa's arrival.  The Holidays are special & the kids excitement is outright contagious!  We rang in the New Year & just like that,  2014 was gone with the blink of an eye.  All told 2014 was relatively uneventful & maybe represents what "normal" now is in all our lives. 

As a result of James knee surgery in early November a problem developed with one of the screws that was placed in his knee, it loosened & appears to have backed out.  Because of this James went back to Boston earlier this month for an appointment with the Endocrinologist.  The concern was over his bones being soft but as a result of this visit James is scheduled to have the knee repaired in Boston on Wednesday, January 21.  The repair is expected to be relatively minor & maybe a same day turn around to come home - stay tuned.  I have not seen much of my "Little Man" for nearly the last 2 weeks since I have come down with a cold & do not wish to get the kids sick so I am missing my "Little Man".  All things considered James seems to be doing well however as always he needs your help to continue his progress so please keep him in your prayers.  

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Comentarios

2 Comentarios

kelly yanda
By
So glad to hear all is well. I'll be sending up extra prayers on the 21st for his knee surgery. Always in prayer for James and the family.Love & miss you guys.
kara skelly
By Kara
I'm happy to hear everyone is doing well and that you enjoyed the holidays. Best of luck with the knee surgery :)