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James’s Story

Our "Little Man" James entered the AMC emergency room on 4/12/10 with a very rare strep type A blood infection, of which we had no idea as his pediatrician and first resident to see him said it was just a "stomach virus".  He decompensated very quickly once we entered the ER and it became clear he was in kidney failure, he was septic, and was suffering from toxic shock all due to the strep group A entering his blood stream.  Normally this bug would only result in a typical "sore" strep throat, however, if it finds it's way into the bloodstream it will wreak havoc.  Unfortunately, James' left arm and right leg were amputated due to the damage done by the disease.  An MRI revealed he had a stroke to the basal ganglia and suffered hypoxia of the cerebellum.  The journey has been very harrowing, trying, & scary for James & his family.  We have such a long road ahead of us, and are hoping for a full recovery.  Our friends at AMC have been outstanding, most definitely saving his life for which we will always be grateful.  James has a long road for recovery but our journey has just begun, please continue to pray for our "Little Man"

Latest Journal Update

James goes to Disneyworld !

James & his family recently made the trip to Disneyworld & simply had a great time.  It was a week of mid summer weather which was much appreciated after the long cold Winter we experienced this year.  James & his sister Hope enjoyed every minute of their trip experiencing pretty much all they they wanted to do.  The weather was fabulous in the 80's all week with no rain, a lot of fun, & exhaustion!  James favorite ride @ WDW was Soaring riding it 3 times with more belly laughs with each ride, he loved it.  Hope was transformed into a princess & James loved swimming & everything that we did.  His nurse came with us & made the trip more enjoyable, it definitely made the trip better for James, he loves Lauren!  The trip was well planned by Mom utilizing the technology provided by Disney.  It allowed us to get the most out of our trip.  The trip ended on a low note when we were informed the day we were to leave that our flight was cancelled delaying us more than 5 hours & forcing our nurse to fly separately on another flight by herself, which I found most upsetting & unable to make any last minute changes.  Despite this happening this was our only disruption to what was otherwise a most enjoyable trip.
James otherwise has been doing well & definitely ready for the nice weather to arrive at home since the Winter has been so long.  He will be heading to Boston in May for his check up without having to deal with any particular problem.  His knee repair appears to be doing well but it will be some time to determine its' success.  Last week was Spring vacation  & as a result I had the opportunity to spend much time with my "Little Man" & my " Little Peanut" which I thoroughly enjoyed, I think they did too.  James continues to try & get those words out but they haven't quite arrived yet but we are not quitting.  All has been good & with the nice weather coming things should be even better since this this is James favorite time of the year.  
April 12 marks 5 years since James was stricken.  It is hard to believe that 5 years have passed since James became ill.  However for me, if it is possible, I love James more than before.  He is such loving, very happy, very good boy ALL the time!  It is rare not to see James happy, & if he is unhappy you better take note because something must be wrong.  He indeed is a very special boy & one of the reasons I love him so much.  His progress continues slowly but always forward.  Much of this is attibuted to your help so as always please continue to keep James in your prayers.

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Comentarios

2 Comentarios

Peg Sluus
By Peg, Albany
So happy to hear about James and his families adventure, it warms my heart to hear he is doing well. Thanks so much for keeping this updated, I've never meet James but have an 8 yr old grandson myself and cannot imagine how difficult this has been for all of you. You and your family are always in my prayers. I'm always praying for James' voice to return, I know it will.
jeffrey haas
By jhaas
Sorry to have lost contact with Jame and his family.Glad to hear you are all well and enjoying life. I will keep you in my prayers as well as my church.