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James’s Story

Our "Little Man" James entered the AMC emergency room on 4/12/10 with a very rare strep type A blood infection, of which we had no idea as his pediatrician and first resident to see him said it was just a "stomach virus".  He decompensated very quickly once we entered the ER and it became clear he was in kidney failure, he was septic, and was suffering from toxic shock all due to the strep group A entering his blood stream.  Normally this bug would only result in a typical "sore" strep throat, however, if it finds it's way into the bloodstream it will wreak havoc.  Unfortunately, James' left arm and right leg were amputated due to the damage done by the disease.  An MRI revealed he had a stroke to the basal ganglia and suffered hypoxia of the cerebellum.  The journey has been very harrowing, trying, & scary for James & his family.  We have such a long road ahead of us, and are hoping for a full recovery.  Our friends at AMC have been outstanding, most definitely saving his life for which we will always be grateful.  James has a long road for recovery but our journey has just begun, please continue to pray for our "Little Man"

Latest Journal Update

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As I wrote in my last update, James had to return to Boston to repair the surgery done on his knee due to a screw backing out from the original surgery.  James was scheduled for early AM surgery requiring a 4AM departure.  However an emergency arose for the Dr. causing James surgery to be delayed until 1:30PM.  As a result of the late surgery & recovery James did not return home until Midnight, a very long day.  Thus far it seems that the surgery was successful however only time will make that determination - stay tuned.  James returned to school in short order without any problem.

The Winter has been long, cold, & hard,  the result of which is we all can`t wait for Springs` arrival.  We are going to jump start that by visiting Disneyworld.  James & Hope & more than excited about going to "The Mouse House".  I recall with James his trip 6 years ago which it seems he does remember with fond memories.  I cannot wait to see James & Hopes faces when we finally arrive, that alone will make this a worthwhile trip.  Their anticipation is contagious & I expect this to be a wonderful experience for the entire family.  We experienced WDW just last year with our older grandchildren, which was great fun, but I expect this experience to be different because James & Hope are much younger, we will keep you posted.

James has been doing very good, doing well at school & enjoying his family every day.  I am still hopeful that he will speak again & Lord knows he tries very hard.  We need to continue to support him & encourage him to speak again.  He will at times get distinct words out, he just needs to become consistant.  One thing is for certain, he is a very happy "Little Man" with an extremely happy disposition.  Despite his good progress none of this would be occurring without your help so please remember to keep James in your prayers.

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1 Comentario

Peg Sluus
By Peg, Albany
Always excited to hear about James and the progress he is making. So happy all went well in Boston and I continue to keep James as well as all of you in my prayers. I'm excited for him and your Disney adventure and hope he and Hope have a wonderful time. I pray for his speech to progress so he can really express himself to the world. As always, Love and prayers coming your way :-)