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James’s Story

Our "Little Man" James entered the AMC emergency room on 4/12/10 with a very rare strep type A blood infection, of which we had no idea as his pediatrician and first resident to see him said it was just a "stomach virus".  He decompensated very quickly once we entered the ER and it became clear he was in kidney failure, he was septic, and was suffering from toxic shock all due to the strep group A entering his blood stream.  Normally this bug would only result in a typical "sore" strep throat, however, if it finds it's way into the bloodstream it will wreak havoc.  Unfortunately, James' left arm and right leg were amputated due to the damage done by the disease.  An MRI revealed he had a stroke to the basal ganglia and suffered hypoxia of the cerebellum.  The journey has been very harrowing, trying, & scary for James & his family.  We have such a long road ahead of us, and are hoping for a full recovery.  Our friends at AMC have been outstanding, most definitely saving his life for which we will always be grateful.  James has a long road for recovery but our journey has just begun, please continue to pray for our "Little Man"

Latest Journal Update

James Deere knee surgery

On November 4 James underwent corrective knee surgery to correct a growth plate issue as a result of his illness some 4 1/2 years ago.  The surgery took place at Boston Children's Hospital & was successful based on early indications.  It was not uneventful.  Although the surgery was successful, James experienced problems for the better part of 2 weeks as a result of the anesthesia.  However James is a tough Little Man & weathered the storm.  He has returned to being his happy self going to school & being surrounded by his family, friends, nurses, & aides.  He recovered just in time to enjoy Thanksgiving with his family at Mimi & Pop's house.  As usual the most wonderful holiday of the year just enjoying a sumptuous meal & a loving family, most enjoyable!  James being surrounded by his sister & cousins was the most enjoyable part of the day.  Prior to Thanksgiving we had to celebrate Hope's 4th Birthday with her brother, cousins, & friends at the children's Jumpy Jump, most definitely a good time had by all.  As you can see, these days it seems that James is just a "Party Animal" but he loves it.  Now it is time to get ready for Christmas & the excitement is building.  Unquestionably James all time favorite movie is "The Polar Express", his excitement is contagious.  All things considered James & company are doing well & for that we are all thankful.  James progress continues however your help is still needed so please continue to remember James in your prayers.  Stay tuned for our next episode.