Our "Little Man" James entered the AMC emergency room on 4/12/10 with a very rare strep type A blood infection, of which we had no idea as his pediatrician and first resident to see him said it was just a "stomach virus". He decompensated very quickly once we entered the ER and it became clear he was in kidney failure, he was septic, and was suffering from toxic shock all due to the strep group A entering his blood stream. Normally this bug would only result in a typical "sore" strep throat, however, if it finds it's way into the bloodstream it will wreak havoc. Unfortunately, James' left arm and right leg were amputated due to the damage done by the disease. An MRI revealed he had a stroke to the basal ganglia and suffered hypoxia of the cerebellum. The journey has been very harrowing, trying, & scary for James & his family. We have such a long road ahead of us, and are hoping for a full recovery. Our friends at AMC have been outstanding, most definitely saving his life for which we will always be grateful. James has a long road for recovery but our journey has just begun, please continue to pray for our "Little Man"
It has been a busy month for James & his family. His February Boston appointment was cancelled since it wasn't possible to have his access port removed as well as an MRI of his knee. As a result James has been rescheduled for these procedures in April. James had a vacation week during February which proved to be a challenging week. The week kicked off with no school the Friday before the vacation started due to a snowstorm. On Saturday James came down with a stomach virus for 24 hours. On Sunday James came down with a cold/Flu which lasted the entire week followed with Hope coming down with it. That same week there were no day nurses since both were on vacation that week. As a result Dad & I were the nurses for the week, it was very challenging but we made it. All things considered the kids were good & we survived. The return of the nurses was a very welcome sight especially since I have been sick since then. So as you can see it has been a very challenging month! Everyone seems to be fine now except that James was put on an antibiotic & now has Thrush but hopefully be over that soon. The weather has made for a very long Winter & we are all ready for the nice weather to arrive & finally get outside, something James really looks forward to. Despite all that has happened James is as always a very good & happy Little Man. Since I have been sick I have not seen James in nearly a week & hopefully will spend time with him today or tomorrow since I am feeling better. Despite this past month's experience all is well & in order for this to continue as always please remember James in your prayers.