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Jake’s Story

Welcome to Jake's CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.  I will do my best to keep updating so no one is in the dark about Jake's progress and where he is headed next!  Please let me know if you have any questions regarding ANYTHING with Jake, and I will answer as fast as I can.

Thank you all for your love, kindness and prayers,

The Beginning:
In late June of 2012, Jake complained to me (Laura) of having a sharp pain in his abdomen, and insisted that we need to go to the ER to get checked out for what we thought could be something like appendicitis. After a CT scan, we were informed that there was a very large mass in his abdomen.  And that is where we began.
After more blood tests, scans, and a biopsy, on July 5, 2012, we were informed that Jake has a grouping (11 or 12 grouped together to form one very large mass) of Desmoplastic Small Round Cell Tumors in his abdomen/pelvic cavity, which is an extremely rare form a Soft Tissue Sarcoma.

What has happened so far and where we are at today:
Jake has undergone 5 cycles of very aggressive chemotherapy, alternating cycles of 6-day and 3-day stays at the hospital for his treatment.  After the second cycle, Jake had a CT scan and his doctors excitedly told him that there had been 20% shrinkage. He then had undergone two more cycles, another CT, and there had been a total (from the beginning) of 40% shrinkage! He just completed his fifth cycle, and we are going down to the University of MN Hospital to meet with an oncologist who specializes in Jake's form of cancer.  This meeting will let us know where we are going next with his treatment. Jake has been a true fighter thus far, and will continue his fight! Thank you again for all of your continued support and prayers. Please let me know if you have any questions, and I will do my best to answer them with what I know.

Latest Journal Update

Until we meet again.

It has been two months. I am not entirely sure what I am supposed to write on here now, however, I thought it would be appropriate to say a few things.

First, and foremost, we would like to thank you. Thank you for your continued thoughts, prayers, kind wishes, generosity and support throughout Jake's battle, and most certainly after. No one fights alone.

Secondly, I guess it would be okay to mention how we are all doing. It would be a lie to say-great. We are getting by, with the help of faith, family and friends. Each day we take one at a time, with good days, and sad days. But each day we are here, we are living, and we are not taking them for granted. Jake lives on in each of us, and he crosses our mind at different times, and in different circumstances. Speaking for myself, when i think of him in the most random of places, often times i giggle out loud, because once again, my Jake is making me laugh... Those are the moments I feel him within, and I hold onto and cherish it with my every breath.

As for Boston and Scarlett... I can truly say they are doing okay. They understand more than I initially gave them credit for, and with many raw and heartbreaking questions asked and answered, all i can do is my very best to make them understand that their daddy has died and gone to heaven. And it is okay. And they are not afraid. We talk about Jake often, and we recall silly stories and memories that they can grasp onto. We laugh. Oh, do we laugh. Jake was that awesome- so awesome that our two (almost 3-yr-old) tells stories about him that we almost pee our pants laughing... And to see her smile because of him, melts my heart. He lives on in each of them. Boston has his expressions, and compassion and sense of humor. He is inquisitive, and has his spunk, and when he hugs me and tells me i am "pretty today"-i know he has his daddy's heart too.

As for Scarlett, when i look into her pretty brown eyes, i see her daddy looking back at me. They share so many physical traits it is unbelievable. She has been blessed with his beautiful coloring, his love for music, and the most excellent of dance moves 😉. She has sass and class and everywhere she goes, she lights up the room, and that i contribute to her daddy... He had the same effect on people.

Scarlett will be 3 years old on Friday (the 17th). It will be a wonderful day to celebrate our sweet girl. Bittersweet too, as we wish so badly that Jake could be here. The other day, Scarlett was walking in our yard, stretching her arms up as high as her little arms could go... When i asked her if she was stretching, she simply replied, "Nope, just tryin' to reach heaven."

I told her to keep trying. That daddy reaches down to her too whenever he can. He is our protector from up there now, and that I am thankful for.

As we endure birthdays, holidays and milestones without him, all I can say is we are trying to be strong. We are putting on our brave faces and forging ahead... I have confidence that it will get better. Jake will forever be in our hearts, and our memories. He was simply unforgettable.

Again, thank you for taking the time to care. For being kind in your thoughts, prayers and generosity.

With sincere love and gratitude,

Laura, Boston & Scarlett

Terry & Steve