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Jake’s Story

Welcome to Jake's CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.  I will do my best to keep updating so no one is in the dark about Jake's progress and where he is headed next!  Please let me know if you have any questions regarding ANYTHING with Jake, and I will answer as fast as I can.

Thank you all for your love, kindness and prayers,
Laura

The Beginning:
In late June of 2012, Jake complained to me (Laura) of having a sharp pain in his abdomen, and insisted that we need to go to the ER to get checked out for what we thought could be something like appendicitis. After a CT scan, we were informed that there was a very large mass in his abdomen.  And that is where we began.
After more blood tests, scans, and a biopsy, on July 5, 2012, we were informed that Jake has a grouping (11 or 12 grouped together to form one very large mass) of Desmoplastic Small Round Cell Tumors in his abdomen/pelvic cavity, which is an extremely rare form a Soft Tissue Sarcoma.

What has happened so far and where we are at today:
Jake has undergone 5 cycles of very aggressive chemotherapy, alternating cycles of 6-day and 3-day stays at the hospital for his treatment.  After the second cycle, Jake had a CT scan and his doctors excitedly told him that there had been 20% shrinkage. He then had undergone two more cycles, another CT, and there had been a total (from the beginning) of 40% shrinkage! He just completed his fifth cycle, and we are going down to the University of MN Hospital to meet with an oncologist who specializes in Jake's form of cancer.  This meeting will let us know where we are going next with his treatment. Jake has been a true fighter thus far, and will continue his fight! Thank you again for all of your continued support and prayers. Please let me know if you have any questions, and I will do my best to answer them with what I know.
        -Laura

Latest Journal Update

Update!

So, i know it has been a while since my last journal entry, but there hasn't been much going on. Jake has been undergoing chemotherapy once a week, to try and shrink the disease in his chest. The first type they tried did not seem to work. For the disease in his chest grew 5%, so they added another drug to the chemo cocktail. Jake has had only one cycle of this new chemo and he had scans a little over a week ago to check progress. Good news, his disease is considered "stable." Not growing, but not shrinking either. According to Dr. Sande, the spots on his brain have grown a "teensy weensy bit." But they still are not convinced they are cancer, and they are too small to even biopsy. Jake is going to continue with this new chemo regimen and hope that it keeps his disease stable. His side effects are less on the side of nausea and vomiting, and more of just extremely tired, has rashes all over his face, sore muscles and achy bones. Jake continues to get stronger though. He has been eating a lot better and gaining weight. He currently is 129lbs! Yahoo!


So...today we had a meeting with the cardiothoracic surgeon. In order to go forward with the next stages of Jakes big picture cancer treatment, the scans had to show that Jake's disease was stable. So we met with Dr. Streitz, from Essentia, to go over Jake's next surgery. The date has been set for Thursday, November 6th! We are confident in Dr. Streitz and his teams' abilities and are looking forward to checking this box off on the list to get Jake better!


We cannot thank you enough for your continued thoughts and prayers. Feel free to send Jake a message on here! He appreciates the friendly "hellos!"
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Comments

17 Comments

Barb Olson
By Barb
Great work people!! Keep it up. You are always in our thoughts and prayers. ((hugs))
April Rautio
By — last edited
Thanks for the update! We think of you guys often at the Rautio household. HAPPY HALLOWEEN TO YOU AND THE KIDS! (((^.^))) (P.S. I love the new picture you have on here!)
Gerry Olson
By Gerry O, Crystal Lake neighbor.
Hey Jake, hope everything goes well the the new surgery. I'm keeping you in my prayers.
Amy Doyle
By
That's fantastic news! Thank God! We will continue to keep Jake (you, B and Scarlett too) in out prayers. Love you guys so much!!! Keep fighting the fight Jake! You got this:)
Kris Young
By Love Kris
Thank you for the update ... always praying and thinking about your family!
Sarah Wicklund
By sarah w
So good to hear ! Keep on keepin on. Hugs to your entire family ♡
Laura Bordson
By Laura Bordson