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Jake’s Story

Welcome to Jake's CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.  I will do my best to keep updating so no one is in the dark about Jake's progress and where he is headed next!  Please let me know if you have any questions regarding ANYTHING with Jake, and I will answer as fast as I can.

Thank you all for your love, kindness and prayers,
Laura

The Beginning:
In late June of 2012, Jake complained to me (Laura) of having a sharp pain in his abdomen, and insisted that we need to go to the ER to get checked out for what we thought could be something like appendicitis. After a CT scan, we were informed that there was a very large mass in his abdomen.  And that is where we began.
After more blood tests, scans, and a biopsy, on July 5, 2012, we were informed that Jake has a grouping (11 or 12 grouped together to form one very large mass) of Desmoplastic Small Round Cell Tumors in his abdomen/pelvic cavity, which is an extremely rare form a Soft Tissue Sarcoma.

What has happened so far and where we are at today:
Jake has undergone 5 cycles of very aggressive chemotherapy, alternating cycles of 6-day and 3-day stays at the hospital for his treatment.  After the second cycle, Jake had a CT scan and his doctors excitedly told him that there had been 20% shrinkage. He then had undergone two more cycles, another CT, and there had been a total (from the beginning) of 40% shrinkage! He just completed his fifth cycle, and we are going down to the University of MN Hospital to meet with an oncologist who specializes in Jake's form of cancer.  This meeting will let us know where we are going next with his treatment. Jake has been a true fighter thus far, and will continue his fight! Thank you again for all of your continued support and prayers. Please let me know if you have any questions, and I will do my best to answer them with what I know.
        -Laura

Latest Journal Update

Things are looking up!

So, yesterday Jake got his chest tubes taken out! Yahoo what a relief to have those buggers out. He still has some fluid in/around his lungs, but they say that will go away over time. Jake also got his staples taken out of his incision today. He said the process didn't hurt too bad, but they took out over 25 of them! Wow. I'd post a picture, but i need to ask Jake first if it is okay! 😉


As for when he'll be home? It could be tomorrow! It all depends on when they can get him in for a CT Scan, and pending that looks okay! So fingers crossed!
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Comments

8 Comments

Linda Sundquist
By Linda Sundquist
Love the pics....Laura!! Jake, you've come so far and I have such respect for your determination and strength! God bless you, Laura and you're beautiful children... keep the faith and as always your all in my thoughts and prayers! !
Kris Young
By Love Kris
I continue to be amazed at the strength you both have shown through this long journey to regaining Jake's health. I'm glad things continue to move forward and Jake is feeling stronger each day ... God is Good ... :)
Amy Doyle
By Amy
That is so wonderful! Way to go Jake. You sure are amazing. Stay strong and keep up the great work. You are doing it. Keep it going. We are all with you every step of the way!!!
Betsy Thun
By Betsy Thun
You look amazing considering it's only been a matter of days since your surgery. May God touch you with His healing hands and get you home soon.
Sharon Johnson
By Gary and Sharon Johnson
Jake and Laura, you are amazing people who continue to impress us with your strength, determination, and love! So happy to hear encouraging news! Continued prayers...God Bless
Sarah Urtel
By Derek & Sarah Urtel and kids
Yay - so happy to hear the update and see the photos! ;)
Barb Olson
By Barb Olson
Wonderful to see you today Jake! You are looking Great! Keep up the fight. God's Blessings to you and your family.
J P
By Julie (Wotczak) Petcoff
Soo happy to hear things are going well!! Hugs to you all!