Jadyn's Journey
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Jadyn has a very rare vascular anomaly MLT (Multifocal Lymphangioendotheliomatosis with Thrombocytopenia). There have been 19 or 20 confirmed cases worldwide of MLT (including & also known as CVAT). The lesions in her GI tract cause massive bleeds.

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  WEDNESDAY, JULY 02, 2008 02:52 PM, CDT
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Jadyn has to have a blood transfusion tomorrow. Her cbc results this morning were hgb 7.8 plt 96 wbc 19.2

She has allot of energy, but yet I can tell she doesn't feel the best. Last night she was chasing me (crawling) playing hide n seek from the living room to the bedroom. It was soooooo cute cause as soon as she came into the bedroom, I was popping up from the other side of the bed & she was giggling soooooo hard!

Jadyn is pointing more at things now (last week) It's sooooo cute! ...she has been reaching out for whatever she wants for months.

EVERYTHING Jadyn does is sooooooo cute!!!

I'm glad Daddy gave blood for her Monday! I wish it would have been ready for her today...it usually takes 3 days .

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Please sign our guestbook. We appreciate them all! I'm eventually going to print them for Jadyn's memory book!

Also, here is a link to youtube to watch videos of Jadyn. http://www.youtube.com/user/angelbear06

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EMAIL AUTHOR
knelson_19@yahoo.com

HOSPITAL INFORMATION
St. John's Mercy Medical Center
615 South New Ballas Road
St. Louis, MO 63141
United States
314.251.6000
 
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