I'm almost 16 years old. I was born with Spina Bifida. It may be a common birth defect, but due to other complications, my condition is rare. I need a vent to breath and a wheelchair to get around. When I was born, some of my doctors told my parents that I wouldn't live to my first birthday.
There is a lot more to me than just a medical diagnosis!
I have a big brother named Caleb, my little sisters are Hannah & Rebekah and my baby brother is Zeke. I will be a sophomore next year and have awesome friends! When I am in too much pain to go to school, I use my computer to skype w/ my class. I love going to youth group at my church. My favorite things to do are playing Wii, listening to music, and watching the Food Network. I love to cook! Giada is my favorite chef.
I started having lots of pain in the summer of '09. The doctors say that my brain stem is tethered to scar tissue from an old surgery. It makes me have really bad nerve pain and neck muscle spasms. It also causes "black spells". I take lots of pain medicine that helps control this.
I love helping kids in my community. I help The Children's Miracle Network and Tucson Medical Center by speaking at events to help raise money and awareness for other children who are sick like me.
I am so loved!
I may have a lot of hard things in my life, but I have a lot of happy things too. My mom and dad love me to the moon and back! I have siblings, grandparents, aunts, uncles, cousins, and a host of friends who include me, pray for me and love me. My mom says that there are people praying for me who have never even met me...that's pretty awesome!
I love God with all of my heart....I made a commitment to follow Him and was baptized when I was a little boy. I know that He has a plan for my life. I know that He has prepared a place for me in heaven. My favorite thing about heaven is that I will be able to run. I want to have a race with Jesus.