My Story

Jacob's journey continues to be an amazing one. Thank you for being a part of it....your love and support are such a blessing to us!


Jacob
I'm almost 16 years old. I was born with Spina Bifida. It may be a common birth defect, but due to other complications, my condition is rare. I need a vent to breath and a wheelchair to get around. When I was born, some of my doctors told my parents that I wouldn't live to my first birthday.

There is a lot more to me than just a medical diagnosis!
I have a big brother named Caleb, my little sisters are Hannah & Rebekah and my baby brother is Zeke. I will be a sophomore next year and have awesome friends! When I am in too much pain to go to school, I use my computer to skype w/ my class. I love going to youth group at my church. My favorite things to do are playing Wii, listening to music, and watching the Food Network. I love to cook! Giada is my favorite chef.

Recent Problems
I started having lots of pain in the summer of '09. The doctors say that my brain stem is tethered to scar tissue from an old surgery. It makes me have really bad nerve pain and neck muscle spasms. It also causes "black spells". I take lots of pain medicine that helps control this.

Giving Back
I love helping kids in my community. I help The Children's Miracle Network and Tucson Medical Center by speaking at events to help raise money and awareness for other children who are sick like me.

I am so loved!
I may have a lot of hard things in my life, but I have a lot of happy things too. My mom and dad love me to the moon and back! I have siblings, grandparents, aunts, uncles, cousins, and a host of friends who include me, pray for me and love me. My mom says that there are people praying for me who have never even met me...that's pretty awesome!

My faith
I love God with all of my heart....I made a commitment to follow Him and was baptized when I was a little boy. I know that He has a plan for my life. I know that He has prepared a place for me in heaven. My favorite thing about heaven is that I will be able to run. I want to have a race with Jesus. 

Feed

Stacie Mockbee posted a new journal entry, "New Medical mysteries for Jake".

Sweet family and friends,It's been almost a year since I have posted anything on caringbridge. I tend to use it when we are facing issues that require some details and ... Read more

barbara parker signed Jacob's Guestbook.

Oh Jakers! How I LOVE you sweet Grandson of ours!! I know your first question is always how are we feeling...and we are feeling fine. I hear you are not feeling as fine. I ... Read more

Betty Jo Kelley signed Jacob's Guestbook.

We are praying for sweet Jacob and for all of you. I love you all so much. Praying he feels better soon! Read more

Vicki Small signed Jacob's Guestbook.

Stacie, how you juggle all of those "plates," I'll never understand! Jacob comes by his valiant heart honestly, between you and Jeff. You all have my prayers."The Lord ... Read more

Nikki Sprenger signed Jacob's Guestbook.

Jacob,             It has been awhile since I have seen your smiling face! I, Brandon and Ashley will keep you in our prayers. We pray that your pain is lessened ... Read more

Gayle Kaelin signed Jacob's Guestbook.

I love you Jacob!  I will continue to pray for you and your doctors as you get ready for more tests.  So glad that you get to be asleep for the big MRI!  It's hard to ... Read more

Christy Armstrong-Lucas signed Jacob's Guestbook.

We are joining you in prayer! Much love, hugs and prayers from all of us. ~ Christy, Mark, Christopher & Cassie ~ 2011 CMNH MO Champion Family Read more

Julie Walden signed Jacob's Guestbook.

Hi Jacob!I'm SO happy to have discovered your CaringBridge page! I'm also very happy to have been a part of the 1600 cards for your 16th birthday campaign!!! ;) I'm ... Read more

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