It has been a long time since I updated, but I am a busy little boy. I entered the Halloween Costume Contest in the Pumpkinfest where I live and I won "Most Creative." My mom was supposed to have a booth set up for me at the festival for Mito Awareness and for me but it didn't happen. She said that things were just to crazy, and that making it to the costume contest alone was a miracle. My nurse Sue helped my mom with the costume. She is a great seamstress. My costume was awesome. I think that I should wear it all the time, it fits my personality!! The KING!!! I got to hang out at the festival for just a little while and then I had to go to the car and eat and change. I go through A LOT of outfits in a day, and my mom goes through A LOT of detergent needless to say. I looked so good though, so a big THANK YOU to Sue. I have been doing pretty good lately. I am still having numerous seizures throughout the day, although some days are better than others. My mom had some tests done and her doctor is sending her to a geneticist too. She is going to have her tests sent to my doctors too, so that maybe they can see if they help out with any of my stuff. The skin biopsy tests that Dr. Cohen did in Cleveland came back "normal" whatever that is. Mom is going to have to get those results sent to Dr. Schoffner also, and then get an appointment set up for me. I haven't been to see him in a while, and he told my Mom and Dad while they were at the Mito Symposium that I should come back to see him. Anyway, I guess I will say goodnight now, thanks for checking up on me!!!
|
