My Story

Little Jacob came along Oct 13, 2006! He was a big, healthy baby and we were thinking we were going to be going home in a day when we got the news he was born with several CHDs (congenital heart defects) and would have to be transferred to another hospital to have heart surgery. We had no idea there was anything even wrong with him.

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Journal

Thursday, June 25, 2009 10:33 PM, CDT


Jacob had a good appointment with Dr. Kort.  His membrane has grown, but the velocity across the valve hasn't really changed.  The way it was explained to me is that although the obstruction is bigger, Jacob has grown and so has his valve, which means it has to go a longer way to get to the other side. (not that it would ever be allowed to actually get to the other side, but I'm hoping it helps make sense).  Maybe that will be the trend while he's growing...the valve keeps getting bigger and the membrane has to keep having a longer way to go to cause trouble!  Another great thing is that the valve is not leaking. When that starts to happen, surgery will happen alot faster.  So, the not-so-good news is that the membrane is growing.  The really good news is that things are still stable and no surgery for now! We'll do what we always do....go back in 6 months for another echo to get measurements- and watch for symptoms in between.  We actually had alot of fun at our appointment.  Jacob is an old pro now, so he helps out with things and likes to chit-chat with "Mr. Paul" (who does the echos...and whom Jacob called "Dr. Paul" tonight) and Dr. Kort.  I would enjoy going there to visit and hang out with our "friends" more often...if it were for any other reason!

Another great thing is that Steph came home this afternoon!  She had a wonderful time with her friends and has already been showing me some cool things that she learned.   Jacob ran up to her when she walked in the door, wrapped his arms around her so tightly, and yelled "I missed you, Sissy !!" when she got here.  Not sure how we're going to handle things when she goes off to college!!

Hope everyone has a wonderful weekend.  Ours is jam-packed, of course, but I think I'm almost getting used to it like that now!

Love to all,

Cindy

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cindipwr2@aol.com

HOSPITAL INFORMATION

Medical City Children's Hospital - Dallas
7777 Forest Lane
Dallas, TX 75230
United States