Jacob London's Journal
Written Nov 10, 2013 6:41amWe arrived home on Tuesday Morning. It was a much harder trip than I anticipated. Other than driving through the night, the ride was not comfortable for Jacob. The constant motion made the nerve pain worse. We made it and was able to get back onto a normal sleeping pattern. Jacob is in a healing period, waiting three weeks to start using his left arm again. The nerve has been worse, but we are hopeful that the journey will be worth it.
Written Nov 3, 2013 1:01pmI'm not sure where to start. This has been a very interesting week. Let see if I can summarize.
We left Sunday morning to drive to New Jersey. Trip should take 15 hours and it did. We did 12 hours on Sunday, and stopped in Harrisburg, PA, Sunday Night about 9 PM EST. This hotel was very interesting, it was downtown and there was no good parking or unloading area. Needless to say we will never stay there again. Monday was getting up and leaving about 8 am to complete the drive for a noon appointment with the surgeon.
On Monday we meet with the Surgeon and was at his office for 3 hours, laying out the rest of the week. After the appointment we found our hotel in New Jersey, now this place was set up much better for Jacob's needs, I had to sleep on a hind-a-way, but once the room was set up, Jacob was able to go about his business very similar to home.
On Tuesday Jacob had a test at the hospital and an appointment with an Oncology doctor. On Wednesday, X-rays at the hospital. Thursday he had CT Myelogram that took 8 hours and was inconclusive. He was admitted into the hospital then had a EMG, so he was at the hospital for the early surgery. Friday morning a 7 am he was in surgery. The surgery lasted over 8 hours! The doctor indicated that it went very well. He did 6 nerve grafts. They used nerves from his legs and graft them to his left arm and left hand.
Saturday was a hard day for Jacob because the nerve pain was worse, due to the surgery, and his fingers that he could feel were hyper-sensitive. He was finally able to rest a little by early afternoon. We were both thinking "what have we done", when Jacob was touching his two fingers that he had lost feeling in. I jumped in and told him to close his eyes. I touched his pinkie finger, nothing. I touched his ring finger, and Jacob said ouch. It was a nerve zap, but there was something. Our spirits were raised greatly after this.
Today, his dressing was changed, and tomorrow he will be discharged. We will need to see the surgeon and then I think we will head home.
Stay tuned for an update when we arrive home.
Written Oct 29, 2013 3:58am
I thought I posted this Sunday 10/27/13, but must of messed it up. Tim
Our lives, hearts, and hopes continue on yet another winding path on this journey.
Today: Jaker Journeys to Jersey, in hopes of relieving his continual nerve in his left hand/arm. This is a new surgery and there are no guaranteed results, but they are hopeful. We have to try so that there are no regrets or ‘if-only' later when we look back at this moment in time.
Yes, this is Jaker’s journey. But as any parent or sibling knows – what happens to one family member ripples and touches us all. (Think of a graduation, or a DUI…good or bad…it affects us all)
I am so proud of Jaker. His unyielding determination, go-with-the-flow attitude, his incredible intelligence, and quick wit through the continual adversities he has endured these ten months – absolutely amazes me. He truly is his father’s son.
Jaker and Tim will be driving to New Jersey. Monday –Thursday will be the various doctor and pre-operation appointments. Jaker’ssurgery is scheduled for Friday, November 1st. They will stay in NJ until Jaker can be released to ride back to Wisconsin where he will stay at a facility through the beginning of December. Jaker will not be able to use his left arm for 6 weeks after the surgery and will need help during that time.
This new journey is tear-jerking because it feels like going back to the beginning – starting over. Like getting the “Go directly to jail.Do not pass go. Do not collect $200” card; and on this journey we are but pawns as we get pushed and bumped into random spots. There is nothing we can do but look at our surroundings, take stock, regroup, and continue moving forwards.
I know this is only a 6 week temporary set-back, to which, hopefully, the rewards will be worth the sacrifice. My heart breaksagain because I know the challenges my son will endure again.
This time will be different; as I will be staying home towork. Emotionally this kills me; logically it makes perfect sense. Without me there will be more room in Jaker’s truck, bathroom things will be easier, and they can share a hotel room. (Gas, food, hotel, and physical therapy needing to be paid out-of -pocket are the financial challenges of this journey.)
Friday, November 1st will be a very long day for me as I wait and get updates of Jaker’s surgery. I may not be with them physically; but my heart and all my love go with them – always.
Thank you for all your continued thoughts and prayers,