My Story

On November 20, 2007 we were blessed with the birth of our beautiful son, Jackson. The pregnancy was normal with no anticipated complications, but we were soon devastated to learn that he has a rare condition called RCDP.

"I praise you, for I am fearfully and wonderfully made" Psalm 139: 14

Journal

Tuesday, June 23, 2009 1:59 PM, CDT


We are having a great summer, but I am lost on the part about "sleeping late."  When does that happen, and would someone please tell my boys??  I am enjoying every day with them and even though it is hot outside we are finding something fun to do most every day.  Last summer Taylor didn't have much of a summer because we were still trying to figure out what to do with Jackson but this summer we have really enjoying being together and looking for things to do. 

Jackson has been on a new medication for several weeks now ---Calcitriol, a form of Vitamin D for his bones and he seems to be very relaxed and content when we are moving him around, so I think it is cooperating with him.  I know a medication like this takes a long while to produce results, we are just glad that he doesn't have any bad reactions that prevent him from trying it.  lately he has been trying to snuggle his head closer to us while he is in a sitting position, like he is trying to show us how much he loves us and it is just the sweetest thing.  I think to myself all the time that if he could wrap his arms around us he would be hugging us all the time because he is such a loving child.  I look at the way he smiles when we snuggle him up and I know he wants so badly to return the love but he could never understand that his smiles give us more love than a hug ever could.  Jackson gives us everything that Taylor does, just in a different, wonderful way.  How lucky we are as parents to get to experience love in two completely different ways. God is so good to us.  

Jackson is changing so fast and starting to look more like a little boy now and losing that "baby" look even though his body is still so tiny.  Some nights I can't sleep and I go over to his crib just to look and make sure he's ok and even now that he's 19 months old I am still in awe at how perfect he looks ---not at all like a "sick" child.  Even at the risk of waking him up and not being able to put him back to sleep I occasionally pick him up and just sit on the bed holding him at all hours of the night.   Those are usually the nights when my heart is having a panic attack and I just need to hold him for a few minutes.  With that said, I think he's perfect and I panic at the thought of anyone ever making fun of him or not seeing what we see in him.  On tv the other night I saw where one of the gossip shows made fun of a young actress who is just beautiful because she had two short thumbs (yes, you heard me right) after they couldn't find anything else wrong with her --she was too perfect, so they searched until they found a reason to ridicule her.  I just wonder what this world will see in my Jackson? I pray that they will see God in him and not look at the physical deformities, but the spiritual purity instead.  Please say a prayer for all of our Rhizo friends, especially Ian, who needs a special pray today.  Have a blessed day.

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St. Vincent's
810 St, Vincent Drive
Birmingham, AL 35205

205-939-7111