Welcome to Jackson's journey. Chad and I created this site to keep friends and family updated about our first little one.
Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook. We will do our best to keep things updated as we get information.
We hate to sound so dismal, but we wanted to make sure that all of our loved ones were in the loop about some news we just received.
Yesterday, we just found out that Jackson has a series of rare heart problems and may need a little extra help when he comes out in the world...In doctor speak, he has pulmonary valve atresia with a intact ventricle septum. Although we are still dumfounded by it all, after we have him there will be a couple days of observation in the critical neonatal unit and then he will have an angioplasty done to see if that solves the problem. After that he may also have a series of other surgeries to get things working right. Of course, only finding this out with weeks to go this is pretty surprising to us, so you may understand we are in a state of shock and have a short amount of time to get a lot of things in order.
We will have the delivery done at Parkland because it is attached to Children's Medical Center, which is where he will probably spend the first month of his life.We are both hoping against all hope that all will work out for the best and that our little baby will be able to come home to a normal life with us.We thank everyone for their support and understanding.We know in times like this it is impossible to come up with the right words to comfort to ease the pain and we don't like sharing our sorrows with the world, but this is and inevitable event that our family will have to fight and we wanted our loved ones to know about the situation.
We just returned from Children's for Jackson's annual heart exam. The best news is that we don't really have anything to report. Jackson seems to be growing up "like a normal boy" and his heart is doing the same. So until next year, we are to continue as we have been and then over time we will observe what we need to do (if anything) for him and his heart condition.
Needless to say, we are elated with the news as we continue with our daily business of work, school and our new adventure with Baby #2, Baby Girl Reo. Jackson's not sure what to think, but since he has until August 2011, we are hoping the idea will wear on him. Since Jackson had a heart defect, this baby is 'treated' as such until we know differently at the OBGYN. For this reason, next week the baby and I will have a similar appointment to the one Jackson had today at Children's to take a look at her heart. We will certainly keep you updated if there is anything to report here as well.
In the meantime, you can catch up with us on Facebook to see what else the Reos are up to - less medically related. It's not always exciting, but since medical news is our only intent here, Facebook is the best way to keep up with us in between yearly visits.
Until next time, have a great weekend and have a wonderful Easter.
Thank you so much for your love, patience and prayers. All of your emails, phone calls and notes have meant so much to us, even though we don’t always respond – we know how much you care. We know how truly loved we are and Jackson will be soon.