Jackson Moore's Journal
Written Jan 23, 2013 9:34pmSorry we haven't updated in a week, but we've been very busy getting ready for Jax's discharge....which happened today!
On Sunday, we roomed in with Jax at the NICU, and Monday and Tuesday were spent cleaning and setting up a makeshift nursery downstairs while the remodeling continues upstairs (almost done!). Today, we got the call that Jax was ready to come home. We met with doctors, nurses, and feeding specialists this afternoon to go over how to administer Jax's medications (a diuretic, sodium supplement, and vitamins) and how to alternate breastfeeding and bottle-feeding with a high calorie formula, at least initially, so he continues to gain weight.
Then we strapped him into his car seat, bundled him up, snapped some pics, and said goodbye to the incredible NICU staff, to whom we're so grateful and will miss so much.
We've been home alone with Jax for about 5 hours now, and are having a great time -- two diaper changes, two feedings, and lots of cuddling.
It might not always be this easy, but after what we've already gone through, we're ready for just about anything.
Written Jan 15, 2013 10:04pmAnother big day! Jax hit 6 lbs, passed his hearing test, and got circumsized. The steps for coming home now are to continue without alarms and to lose the nasal gavage (feeding tube). He still gets tired during feedings once in a while and has to take the last little bit of milk through his tube. Once the tube is gone for good, we know we can feed him sufficiently at home.
We also have to line up a pediatrician for him, and he has to undergo a congenital heart screening. The murmur his doctor heard in the early weeks of his life isn't detectable anymore, but the screening is standard procedure.
Lastly, we get to room in with him for a night or two at the hospital. Looking forward to that. :)
Written Jan 14, 2013 9:29pmBig day! Jax was moved to the continuing care nursery! Most babies don't spend much time there before being discharged. They want to make sure he can keep gaining weight while exclusively bottle- or breastfeeding, which he's doing very well with. His weight is 5 lbs, 13.1 oz. All the nurses call him "fattie." :)
He also likes baths, doesn't cry or fuss like a lot of the other preemies do. The best pics I've taken of him are during or after a bath.
Last but not least, Jax had a follow-up to the brain ultrasound he had shortly after he was born. The first one showed something the doctors said they weren't worried about, but of course we were. They ruled out a brain hemorrhage but wanted to keep an eye on it. Well, today's ultrasound showed absolutely no sign of the previous spot. We're very relieved about that, and about all Jax's developmental milestones. He really is Superpreemie.