Morning all,
how quiet is our house, Kevin is at work and both kiddies are still asleep!!!! unheard of at 8.10a.m! busy day yesterday, visit to London for Jacks check up and then it was my birthday, people coming around and we went out for a meal to the indian, us four, my Mum and Dad and our neighbours ( Aunty Pauline and Uncle Tony) it was lovely. 21 again!
London:-
Proff pretty happy with Jack, luckily he could not longer feel a lump behind Jacks nipple ( big sigh all around), he said this was possibly due to the port, when they place the port, obviously things need to be cut etc and to cut a long discussion short it could have been sort of fibres of skin that group together, a bit like "breast mice".
Proff has finally got some joy back from the Orthapedics, they emailed him 2 weeks ago, confirming they were going to see Jack and that they had written to us, surprise surprise, we have not heard anything, so he is ringing them today to speak to the person who emailed to find out where our letter is! He asked Jack to walk up and down the corridor, to see if he could still notice anything, and even with Jacks jeans on, he could see how "knock Kneed" Jack is, also how Jacks holds his knees alot as they hurt most of the time.
Jack skin seems to have got worse. The bigger patch has gone, but he has lots down his legs, proff says they are "pityriasis", he wants to see if they go on their own without the capsule to help them go, bless him they are covering his legs now, they tend to mostly effect immunosuppressed people? but anyone can get it.
He also brought our attention to Jacks veins in his neck as one side is rock hard, he wanted to point it out so that we did not panic when we felt it, it is where the tube went through that vein to access the port and his heart, it feels relly strange!
So still waiting for orthapedics, but, we are one step closer now!
Hope you are all ok x
