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My Story

Jack was born at St. Peter's hospital on July 12th at 10:24am. He was the most perfect angel we had ever seen. Later that evening Jack turned blue and was diagnosed with Transposition of the great vessels. He was transfered to Albany Medical Center to await open heart surgery.

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Transposition of the great vessels is a heart defect in which the aorta and the pulmonary arteries are switched. So the blood that is circulating through Jack's lungs never gets circulated through his body. At birth there is a small hole in the heart that mixes the blood from the two sides of the heart. This allowed Jack to have oxygenated blood mixing with his deoxygenated blood. The hole closes within 12 hours of birth which is why Jack seemed fine at first but turned blue around 9pm. That evening was very scary because we had no idea what was going on. By 11pm a pediatric cardiologist had come in and told us Jack's diagnosis and that he was already being transferred to Albany Med. Jack was lucky because they were able to reopen the hole in his heart with a medication and did not require emergency surgery that night. I was discharged along with Jack because there was no way he was going without me. Over the next few days he was stabilized in the NICU. He had to stay on the medication to keep the hole in his heart open, along with some pressurized oxygen and IV food. When he went into surgery strong and stable. The nurses we had in the NICU were amazing!!! They took family photos and did arts and crafts with Jack. I was able to hold him twice and every time his heart rate came down and he fell right asleep in my arms. It has been hard not being able to pick him up every time he cries but I know he will be okay.
He went into surgery this morning and the nurse just came out to tell us that everything went well (uneventful as the nurse put it which made me very happy!!!!!) It will be a few hours before the surgeon come out but the arteries are switched!!
The surgeon came out and all went well. We'll keep you posted through our journal postings. I'll post some pictures as soon as I can!

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Shannon James posted a new journal entry, "Link".

https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=449575&supId=307054447Sorry the link didn't attach on the last post!! Read more

katie mcnally signed Jack's Guestbook.

hey. Have just came accross your story on the 'baby centre' website. Have been looking at lots of different information the last couple of days as we have found out our ... Read more

Jenna Fowler signed Jack's Guestbook.

Hi My name is Jenna and I came across your site.  Jack is an amazing little boy.  He is a courageous, strong and determined fighter.  he is a brave warrior, smilen ... Read more

Shannon James posted a new journal entry, "Link".

https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=449575&supId=307054447Sorry the link didn't attach on the last post!! Read more

kathy foley signed Jack's Guestbook.

JACK IS AWESOME AND I AM NOT JUST SAYING BECAUSE I AM HIS GRANDMOTHER Mema Foley Read more

Shannon James posted a new journal entry, "American Heart Association Walk".

Hi everyone,I hope everyone is having a great summer!  I just wanted to let everyone know that it's time for the American Heart Association walk again.  The date is ... Read more

diane shields signed Jack's Guestbook.

we are so happy for all of you. keep up the good work jack! we love you. tom&diane Read more

Judy Rosch signed Jack's Guestbook.

Dear Shannon, Matt and Jack, Thank you, thank you for the update with pictures.  It is so great to hear about Jack and how much he lights up your world.  I loved seeing ... Read more

Lorraine Puckey signed Jack's Guestbook.

Hi that is such great news.  Im so happy that he is doing so well.  The magic of prayers.  Thanks for the update.,  Love you all Read more

Shannon James posted a new journal entry.

Hi everyone.  We thought we would give you a little update on Jack!  He had a cardiology appointment yesterday and did great!  He was a very good boy and sat still for ... Read more

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