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My Story

To join Jack & his family in the fight against pediatric brain cancer please go to:

WWW.TEAMJACKFOUNDATION.ORG

On April 22, 2011, Jack was life flighted to Children’s Hospital Omaha after suffering a life threatening seizure. An MRI showed a lesion in the left temporal lobe. Doctors feared HSV Encephalitis, a life threatening brain virus. A rigorous 21-day treatment followed. Later testing revealed our worst fear--a brain tumor.

On May 20, 2011, a tumor resection surgery was attempted.  Only a small amount of the tumor was removed.  The remaining tumor was declared inoperable.  Pathology revealed a cancerous glioma. During this time, Jack battled the onset of Secondary Epilepsy--a condition caused by the tumor.  After April 22, Jack suffered frequent partial seizures, sometimes upto 10 a day. The seizures persisted despite high dosages of two anti-seizure medications.

Specialists at Children's Hospital Boston were consulted in August 2011. Pediatric Neurosurgeon Liliana Goumnerova indicated that she felt she could likely safely resect the tumor, and at the same time achieve seizure relief by using intraoperative electrocorticography.  Jack's 2nd brain surgery in 5 months occurred at Boston on October 10th.  The second surgery went great.  After surgery, Dr. Goumnerova came out of the operating room smiling.  Dr. Goumnerova removed a golf ball sized tumor.  Nearly all of the tumor was removed, with the possible exception of a small amount of residual near the brain stem.  Thankfully, since the second surgery, Jack has not suffered a single seizure and is doing great clinically.  

In January, Jack traveled to Boston for his first follow-up MRI.  On January 11, 2012, the MRI looked great as the "spot" showed no sign of growth.  Jack's neurologist then aggressively began tapering Keppra.  By March 22, 2012, Jack was down to one anti-seizure medicine.

A 6-month post operation MRI on April 18, 2012 in Boston surprisingly revealed a progression of the "spot." The "spot" is inoperable.  Doctors have now decided that chemotherapy was the next best therapy. Accordingly, Jack had a port surgery on April 26, 2012 and began 60 weeks of chemotherapy on April 27, 2012, at CH Omaha.  His chemotherapy will continue until approximately July 2013.

Jack and his family have received incredible support.  Jack has a very loving family and community.  Nebraska's Rex Burkhead has also helped make people aware of Jack's fight by so graciously wearing a "Team Jack - Pray" wristband during the 2011 and 2012 football seasons. We thank God for his involvement in Jack's life, as well as the thousands of supporters across the country.  God is good.

Jack and his family gives thanks and praise to Jesus for all of Jack's prayer warriors, supporters, and followers.  God Bless you all for your touching and overwhelming support.  

Love,

Andy, Bri, Jack, Ava & Reese

Feed

Andy Hoffman posted a new journal entry, "Medical Update".

A little over one month ago Jack was enrolled in a clinical trial to battle his brain tumor. The initial days were difficult, as Bri and Jack spent the first eight days in ... Read more

Beverlyann Brunswick signed Jack's Guestbook.

Praying for the family.I am glad they are home for a time. Hope the clot goes away without any trouble.Good luck. Read more

rebecca mccoy signed Jack's Guestbook.

Keep hanging in there Jack.  I pray for you and your family every day.  God bless. Read more

Becki Cusimano signed Jack's Guestbook.

Jack and family--I was thinking of you (again) this weekend and made a mental note to check for updates.  Was glad to see one in my emailbox this morning. I am sooooo ... Read more

Jan Krakow & Family signed Jack's Guestbook.

Continuing to send many prayers your way for Jack and the rest if your family🙏Hang in there Jack we are all praying for you❤️ Read more

Jaci Harmon signed Jack's Guestbook.

Glad to hear Jack is not having the yuckky side effects.  Lifting you all up in prayer daily. Read more

nate birch signed Jack's Guestbook.

Nathan BirchDear Jack and family- I wanted to say thanks for all the effort you all put into this last weekend.   In May, I ran 26.2 in Lincoln for my daugher Claire ... Read more

Margret Thorpe-Schultz signed Jack's Guestbook.

Jack, hope the trial treatment is going well.  Just think "when" this is successful for you, how much it will help other children.  As a long time Husker Fan, now living ... Read more

Erin Nahorny signed Jack's Guestbook.

Prayers for our friends! Glad Jack start on this trial hasn't been too difficult. Continuing our vigil! Read more

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