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My Story

To join Jack & his family in the fight against pediatric brain cancer please go to:

WWW.TEAMJACKFOUNDATION.ORG

On April 22, 2011, Jack was life flighted to Children’s Hospital Omaha after suffering a life threatening seizure. An MRI showed a lesion in the left temporal lobe. Doctors feared HSV Encephalitis, a life threatening brain virus. A rigorous 21-day treatment followed. Later testing revealed our worst fear--a brain tumor.

On May 20, 2011, a tumor resection surgery was attempted.  Only a small amount of the tumor was removed.  The remaining tumor was declared inoperable.  Pathology revealed a cancerous glioma. During this time, Jack battled the onset of Secondary Epilepsy--a condition caused by the tumor.  After April 22, Jack suffered frequent partial seizures, sometimes upto 10 a day. The seizures persisted despite high dosages of two anti-seizure medications.

Specialists at Children's Hospital Boston were consulted in August 2011. Pediatric Neurosurgeon Liliana Goumnerova indicated that she felt she could likely safely resect the tumor, and at the same time achieve seizure relief by using intraoperative electrocorticography.  Jack's 2nd brain surgery in 5 months occurred at Boston on October 10th.  The second surgery went great.  After surgery, Dr. Goumnerova came out of the operating room smiling.  Dr. Goumnerova removed a golf ball sized tumor.  Nearly all of the tumor was removed, with the possible exception of a small amount of residual near the brain stem.  Thankfully, since the second surgery, Jack has not suffered a single seizure and is doing great clinically.  

In January, Jack traveled to Boston for his first follow-up MRI.  On January 11, 2012, the MRI looked great as the "spot" showed no sign of growth.  Jack's neurologist then aggressively began tapering Keppra.  By March 22, 2012, Jack was down to one anti-seizure medicine.

A 6-month post operation MRI on April 18, 2012 in Boston surprisingly revealed a progression of the "spot." The "spot" is inoperable.  Doctors have now decided that chemotherapy was the next best therapy. Accordingly, Jack had a port surgery on April 26, 2012 and began 60 weeks of chemotherapy on April 27, 2012, at CH Omaha.  His chemotherapy will continue until approximately July 2013.

Jack and his family have received incredible support.  Jack has a very loving family and community.  Nebraska's Rex Burkhead has also helped make people aware of Jack's fight by so graciously wearing a "Team Jack - Pray" wristband during the 2011 and 2012 football seasons. We thank God for his involvement in Jack's life, as well as the thousands of supporters across the country.  God is good.

Jack and his family gives thanks and praise to Jesus for all of Jack's prayer warriors, supporters, and followers.  God Bless you all for your touching and overwhelming support.  

Love,

Andy, Bri, Jack, Ava & Reese

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Andy Hoffman posted a new journal entry, "Medical update and Boston Marathon".

Tuesday Jack had an EEG at Boston. We learned Wednesday morning that the results of the EEG were "normal".  This was great news, especially given the two surgeries he ... Read more

Erin Nahorny signed Jack's Guestbook.

Stupid cancer! I use your line all the time, "Don't let your highs get too high or your lows get too low." So true. I wish you never had to worry about this ever again!! ... Read more

Dave and Rennae Padderud signed Jack's Guestbook.

Congrats on the race completed, and we will keep your family and other families in our thoughts and prayers for the race that continues. Read more

Spencer Brandsrud signed Jack's Guestbook.

Not the news that any of us wanted to hear :(  I do believe that Jack is in great hands...between the doctors at Boston and God, I couldn't think of a better place to ... Read more

Amy Christensen signed Jack's Guestbook.

Thinking of you all! Thank you for honoring Cole and many of our other warriors during the marathon! Thanks for the update. We will be praying for Jack and your family ... Read more

Andy Hoffman added a new photo.

Connie Brost signed Jack's Guestbook.

Having trouble making a donation but I will keep trying!  BEST WISHES IN EVERYTHING BOSTON!!!!  AS ALWAYS LOVE AND PRAYERS FROM NEBRASKA PANHANDLE!  Connie Brost Read more

Andy Hoffman posted a new journal entry, "Medical Update, Boston Marathon & More ...".

Happy Easter from Boston, Massachusetts! Christ has risen!Easter has always held a very special place in our hearts.  However, Easter also marks an anniversary for our ... Read more

Andy Hoffman added a new photo.

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