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Final Boston Follow-up

After round tabling Jack's last MRI, the final decision has been made just to sit tight for 3 more months. Originally we had hoped to stretch Jack's MRI out to 6 months, however, given the "concern", they want Jack back in 3 months for more testing.

In reviewing the case, Jack's neuro-oncologist said that there is a good chance that nothing will change between MRIs, and that Jack's status doesn't change. However, she also warned that this signal change could represent the early stages of tumor regrowth. There is no way of knowing except waiting.

Despite the notable MRI concern, Jack's neurologist has nonetheless put a fairly aggressive plan in place to taper Jack's seizure meds until he is no longer taking any medicine.  That is a welcome change and Jack is excited about.

All in all we are very optimistic and are going to keep doing what we always do ... Keep praying and living each day to the fullest.  We have a fantastic summer ahead of us and we are excited that Jack is going to get to swim in the river for the first time since he was 4 years old.  

Thank you all for your love and support. We look forward to reporting a good MRI later this summer!

God Bless,

Andy, Bri, Jack, Ava, & Reese








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Comments

10 Comments

Judy Krysl
By Judy Krysl
Just me, back again as I pray about the next MRI, and about the researchers' progress. Tonight, I'm praying prayers of thanksgiving, that Jack has had this summer to do the things boys his age do. I hope the last weeks of vacation are good ones and that school starts with bright enthusiasm on all sides.
Judy Krysl
By Judy Krysl & Marie Kramer
Just checking back, mid-summer, during prayer to be sure that my thinking hasn't veered away from the information here--and to start praying more intensely about the upcoming MRI. I am hoping that this is a GREAT summer for the whole family!
Anne Fangman
By Anne Fangman
Praying for Jack and your family everyday!! I am so glad that you all have a great summer to look forward to. God bless and take care.
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Nanette Circo
By Nanette Circo
Keep going Jack---have a great summer, swim a lot and keep the faith. Sending you Big Reg love and prayers from a Husker in San Diego (grew up in Omaha, UNL alum)
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Anisa Hoie
By Anisa Hoie
Thanks for the update! Keeping you all in my thoughts and prayers! Have a great summer! :)
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Barbara Waterman
By Barbara Waterman
Have an amazing summer!! Prayers continue for Jack and your family.
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Janet Brewster
By Janet
Happy summer! Will continue the prayers!!!!! Bless you all!
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Karen DeBoer
By Karen DeBoer
You guys are such a true example of living each and every day to make it really count. Have a wonderful summer and know you continue to be in my thoughts and prayers!
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Dawn, Cory, Kayne & Vadyn Bosanko
By Dawn, Cory, Kayne & Vadyn Bosanko
Happy swimming Jack! Love from Tennessee!
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