Jack Hoffman's Journal
December 30th MRI
Written Dec 30, 2013 3:03pm by Andy HoffmanHi Friends & Family,
If we have done our counting right, today was Jack's 16th MRI since first being diagnosed with a brain tumor nearly 3 years ago. Today was number 16.
Today Jack underwent an MRI at Children's Hospital Omaha as part of his post chemotherapy follow-ups. Always a horrendously nerve-wracking day of waiting, we were blessed with some good news by Jack's oncologist Dr. Abromowitch -- that the residual tumor appeared stable and remains in remission.
As Jack's neuro-oncologist, neurologist, and neurosurgeon are all based out of Boston Children's, the disc is being sent to them for their final review and hopefully affirmation. We are scheduled for a conference call on Friday with Dana-Farber/Boston Children's Pediatric Neuro-Oncologist Dr. Susan Chi.
Jack's next MRI will be in April, in Boston. He will be receiving MRIs every 3 months until he reaches the 1-year point. Then it will be every 6 months.
We are so blessed to have an awesome medical team, spanning two states, that work collaboratively. We are so thankful for Jack's medical team.
Thank you to everyone who has been saying prayers for a good MRI report. Jack has one of the greatest prayer teams in the world, and we thank you for that.
We are praying that everyone has a blessed New Year. Stay safe, warm and CHEER LOUD FOR THE HUSKERS!
Andy, Bri, Jack, Ava & Reese
Important MRI Today ... Results
Written Oct 2, 2013 7:34pm by Andy HoffmanThis photo was taken a couple of hours ago before supper. Today was a great day for Jack. After a morning MRI and a day's worth of medical appointments, we learned that Jack's tumor is stable (in remission) and that his chemotherapy port can be removed. While residual tumor remains, it is inactive as he has been off treatment for three months and it has not grown. While it is likely that Jack will need more treatment in the future, doctors overall feel good about Jack's case and have told us that it is possible, that he is done with treatment altogether. About 1/3 of all cases don't relapse and you are done. We are praying that Jack is in that 1/3.
Regardless, we are so thankful to God for this day. Thank you for all of your love, prayers and support. It truly means the world. We continue to be buoyed by everyone's support.
To learn more about joining the fight against pediatric brain cancer, please go here: www.TeamJackFoundation.Org.
Final Chemotherapy, Next Steps
Written Jun 18, 2013 6:31pm by Andy HoffmanJust wanted to drop everyone a quick medical update on Jack. Today was a very big day for Jack as it marked the end of his 60-week chemotherapy protocol. Jack is truly blessed to have completed this protocol as a very large percentage of children that go through it, are often unable to due to adverse drug reactions. Praise the Lord!While we will not miss the weekly 8-hour round trip drives to Omaha, we are a bit anxious about what this darn tumor might do now that it does not have chemotherapy attacking it. Only time will tell.While Jack is elated by today's milestone, his parents' are with guarded celebratory emotions. Jack's pediatric neuro-oncologist, during the last visit, reminded us that with an inoperable brain tumor, there is always the likelihood of "relapse", or re-occurrence. This could happen in a week, 3 months, 3 years, or never. While we pray for the "never", we are asking God to help us let tomorrow worry about itself, and focus on the gift that he has given us called today.Jack still has his chemo port. He will have an MRI on June 28th at Children's Hospital Boston. This will be a baseline MRI so we know where the tumor is at immediately following therapy. While any gross abnormality could spell an immediate new treatment plan for Jack, which is always the case, doctors are not expecting that for this one. Jack will then have an MRI every 3 months for the next year, to monitor the tumor. If things look good this fall, he will have a surgery to remove his chemo port. Year two it will be every 6 months. Then, if still going with out a relapse after two years, once every year.While we are not letting today's milestone let us "get too high", we are deeply thankful to God for all that he has done for Jack -- two safe brain tumor surgeries, 60-weeks of chemotherapy, and lots of prayer warriors. And a little boy to love and hug to boot!We will continue to keep everyone updated on Jack's medical status through CaringBridge. For those interested in in our family's effort to raise money and awareness for pediatric brain cancer, we would invite you to follow those efforts online at: www.TeamJackFoundation.Org.Please know that we continually feel the strength of our Lord, each and every day, as we go through this marathon of healing. This is a direct result of all of you -- the best group of prayer supporters there is!Continued blessings to all of you. Please find room in your prayer lists for all of those other children and families affected by childhood cancer. To learn more about those families, please consider joining Jack's Facebook page, where we try to share those family's stories as much as possible.Take care and God Bless,Andy, Bri, Jack, Ava, & Reesephoto note: Jack with his oncology nurse, Anisa Hoie today