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My Story

To join Jack & his family in the fight against pediatric brain cancer please go to:

WWW.TEAMJACKFOUNDATION.ORG

On April 22, 2011, Jack was life flighted to Children’s Hospital Omaha after suffering a life threatening seizure. An MRI showed a lesion in the left temporal lobe. Doctors feared HSV Encephalitis, a life threatening brain virus. A rigorous 21-day treatment followed. Later testing revealed our worst fear--a brain tumor.

On May 20, 2011, a tumor resection surgery was attempted.  Only a small amount of the tumor was removed.  The remaining tumor was declared inoperable.  Pathology revealed a cancerous glioma. During this time, Jack battled the onset of Secondary Epilepsy--a condition caused by the tumor.  After April 22, Jack suffered frequent partial seizures, sometimes upto 10 a day. The seizures persisted despite high dosages of two anti-seizure medications.

Specialists at Children's Hospital Boston were consulted in August 2011. Pediatric Neurosurgeon Liliana Goumnerova indicated that she felt she could likely safely resect the tumor, and at the same time achieve seizure relief by using intraoperative electrocorticography.  Jack's 2nd brain surgery in 5 months occurred at Boston on October 10th.  The second surgery went great.  After surgery, Dr. Goumnerova came out of the operating room smiling.  Dr. Goumnerova removed a golf ball sized tumor.  Nearly all of the tumor was removed, with the possible exception of a small amount of residual near the brain stem.  Thankfully, since the second surgery, Jack has not suffered a single seizure and is doing great clinically.  

In January, Jack traveled to Boston for his first follow-up MRI.  On January 11, 2012, the MRI looked great as the "spot" showed no sign of growth.  Jack's neurologist then aggressively began tapering Keppra.  By March 22, 2012, Jack was down to one anti-seizure medicine.

A 6-month post operation MRI on April 18, 2012 in Boston surprisingly revealed a progression of the "spot." The "spot" is inoperable.  Doctors have now decided that chemotherapy was the next best therapy. Accordingly, Jack had a port surgery on April 26, 2012 and began 60 weeks of chemotherapy on April 27, 2012, at CH Omaha.  His chemotherapy will continue until approximately July 2013.

Jack and his family have received incredible support.  Jack has a very loving family and community.  Nebraska's Rex Burkhead has also helped make people aware of Jack's fight by so graciously wearing a "Team Jack - Pray" wristband during the 2011 and 2012 football seasons. We thank God for his involvement in Jack's life, as well as the thousands of supporters across the country.  God is good.

Jack and his family gives thanks and praise to Jesus for all of Jack's prayer warriors, supporters, and followers.  God Bless you all for your touching and overwhelming support.  

Love,

Andy, Bri, Jack, Ava & Reese

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Connie Brost signed Jack's Guestbook.

Having trouble making a donation but I will keep trying!  BEST WISHES IN EVERYTHING BOSTON!!!!  AS ALWAYS LOVE AND PRAYERS FROM NEBRASKA PANHANDLE!  Connie Brost Read more

Andy Hoffman posted a new journal entry, "Medical Update, Boston Marathon & More ...".

Happy Easter from Boston, Massachusetts! Christ has risen!Easter has always held a very special place in our hearts.  However, Easter also marks an anniversary for our ... Read more

Andy Hoffman added a new photo.

Judy Krysl & Marie Kramer signed Jack's Guestbook.

Hi, Jack, Andy, Bri, Ava, and Reese--  I'm just checking in to spend some time in prayer--to agree in prayer with the other warriors.  My mother, age 90, remembers ... Read more

Bob and Judy Knutson signed Jack's Guestbook.

Dear Jack and Mom and Dad and Sisters, So happy to hear your good news,. You are growing up so fast, I am so happy the chemo is  finished  so you can just have fun and ... Read more

Becki Cusimano signed Jack's Guestbook.

Hey, Jack--we just returned from 6 days in Nebraska, so missed your good news.  Soooo happy to hear the MRI results were good.  I was thinking about you while we watched ... Read more

Teresa signed Jack's Guestbook.

Hi,I just heard of Jack's story through Kathryn Gehring.  We are from Sioux Falls, SD and our son was just diagnosed with a brain tumor in August of this past year.  We ... Read more

Don & Carlene Burkhead signed Jack's Guestbook.

Aw that is awesome ~ no that's super duper awesome news!  We are wearing our 'shirts' & wrist bands & thinking of Jack & all of you throughout the days.  ... Read more

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