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Jack’s Story

To join Jack & his family in the fight against pediatric brain cancer please go to:

WWW.TEAMJACKFOUNDATION.ORG

On April 22, 2011, Jack was life flighted to Children’s Hospital Omaha after suffering a life threatening seizure. An MRI showed a lesion in the left temporal lobe. Doctors feared HSV Encephalitis, a life threatening brain virus. A rigorous 21-day treatment followed. Later testing revealed our worst fear--a brain tumor.

On May 20, 2011, a tumor resection surgery was attempted.  Only a small amount of the tumor was removed.  The remaining tumor was declared inoperable.  Pathology revealed a cancerous glioma. During this time, Jack battled the onset of Secondary Epilepsy--a condition caused by the tumor.  After April 22, Jack suffered frequent partial seizures, sometimes upto 10 a day. The seizures persisted despite high dosages of two anti-seizure medications.

Specialists at Children's Hospital Boston were consulted in August 2011. Pediatric Neurosurgeon Liliana Goumnerova indicated that she felt she could likely safely resect the tumor, and at the same time achieve seizure relief by using intraoperative electrocorticography.  Jack's 2nd brain surgery in 5 months occurred at Boston on October 10th.  The second surgery went great.  After surgery, Dr. Goumnerova came out of the operating room smiling.  Dr. Goumnerova removed a golf ball sized tumor.  Nearly all of the tumor was removed, with the possible exception of a small amount of residual near the brain stem.  Thankfully, since the second surgery, Jack has not suffered a single seizure and is doing great clinically.  

In January, Jack traveled to Boston for his first follow-up MRI.  On January 11, 2012, the MRI looked great as the "spot" showed no sign of growth.  Jack's neurologist then aggressively began tapering Keppra.  By March 22, 2012, Jack was down to one anti-seizure medicine.

A 6-month post operation MRI on April 18, 2012 in Boston surprisingly revealed a progression of the "spot." The "spot" is inoperable.  Doctors have now decided that chemotherapy was the next best therapy. Accordingly, Jack had a port surgery on April 26, 2012 and began 60 weeks of chemotherapy on April 27, 2012, at CH Omaha.  His chemotherapy will continue until approximately July 2013.

Jack and his family have received incredible support.  Jack has a very loving family and community.  Nebraska's Rex Burkhead has also helped make people aware of Jack's fight by so graciously wearing a "Team Jack - Pray" wristband during the 2011 and 2012 football seasons. We thank God for his involvement in Jack's life, as well as the thousands of supporters across the country.  God is good.

Jack and his family gives thanks and praise to Jesus for all of Jack's prayer warriors, supporters, and followers.  God Bless you all for your touching and overwhelming support.  

Love,

Andy, Bri, Jack, Ava & Reese

Latest Journal Update

Medical Update from Boston Today

Jack and Mom flew to Boston Sunday morning and arrived just in time for a late Sunday afternoon MRI at Boston Children’s Hospital. Today,Jack and Mom met with Jack’s pediatric neuro-oncologist Dr. Susan Chi.  We were relieved and comforted to learn this morning that Jack’s brain tumor continues to remain stable.  With Dad on the speaker phone from his office in Atkinson, Dr. Chi said that Jack’s tumor is “rock stable.” Prayers answered.  This afternoon Jack then had an echo and cardiology exam, related to the clinical trial study.  

The drug company, GSK, only allows a 28-day supply of medicine during this clinical trial, and each new 28-day supply is required to be picked-up at the clinical trial site. Tomorrow, Mom and Jack will head back to Nebraska with a fresh set of meds.  They will leave Boston in the early morning, and have one primary goal—get to Atkinson on time for Jack’s baseball game in Atkinson at 7 p.m.!  We are so thankful to God that Jack can even play baseball.  It has taken countless answered prayers to bring him to the batter's box, and we couldn't be more thankful--even if he does strike out! 

Thank you everyone for your ongoing prayers for Jack and all of the other children facing any form of childhood cancer.  Have a blessed week and a terrific summer!

 Love,

 The Hoffman Family

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Comments

60 Comments

mc rothmeyer
By Cathy Rothmeyer
Will continue to pray here in Arkansas...I grew up in Arnold (Custer County)
Kay Connery
By Kay Connery
Hope your Summer is a healthy one, Jack. Take care. We are thinking of you and your family. Kay Connery, North Plate
Cindy Parr
By Cindy Parr
Lots of love and continued prayers from Omaha!
Becki Cusimano
By Becki C.
Thanks for the update. Happy summer! Love and prayers from Iowa. GBR!
Carlene Burkhead
By
Super Duper awesome great news! Thanks be to God & all the prayer warriors all over the world praying for Jack & all the little youngsters with these horrible brain cancers. Thank you Andy & Bri for keeping us updated on Jack's reports. Hope he had a good time at the baseball game.
Judy Krysl
By Judy Krysl
I am thanking God for more time with that tumor staying stable--but also giving thanks that the medicine and trial may be yielding information that will help more youngsters in the future. Hoffmans, you touch my heart. I'm glad that you make it a priority to get Jack back to be on a team with his friends, whatever skills are brought to play on the diamond. But in my mind, for years now, you've been hitting the ball out of the park.
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1 person hearted this
Tara Wallesen
By Tara Wallesen
i"m a Husker living in Texas. Jack has been in my prayers for years and will continue to be along with your family! Fight On!
Becky Olson
By Becky Olson
Super good news! What a wonderful way to start the summer. Prayers keep working!
Deb Kaup
By Deb Kaup
Great News!
Enjoy the baseball season.
Teresa Belter
By
Awesome news! Good luck to Jack and his team tonight