Isaiah Lawson's Journal
Big Big Day!
Written Sep 4, 2013 11:08pmA year ago we would've had a hard time imagining this day would come...
But first, a lot has happened since our last update.
We started off this summer with a long Drive to New York. We visited family, and watched my Nephew, Ryan Lawson, graduate from High School. We camped on the beach of the Atlantic Ocean, in New York. Isaiah SWAM in the Ocean. Something he has NEVER been able to do with all those tubes coming out of him. We ate awesome seafood on the beach in Rhode Island. Had New England Clam Chowdah in Boston Mass. Visited most of my Dad's side of the family in Massachusetts, as we said goodbye to my Uncle John. And then we took the long drive back home in time for the 4th of July.
We have done lots of work around our house including moving Isaiah's Grandparents, Willy and JoAnn Gundersen, into the house next door as we helped build an edition on their new house. But the biggest edition to our house has been Isaiah new Make a Wish! Most kids go to Disney, or a sports game... Isaiah wanted a HUGE playset that he and his siblings could play on for years to come. Make a Wish delivered in a BIG way. Check out the News Story here: http://www.wday.com/event/article/id/84177/
Isaiah even got to take in a Mets game in New York, and a Twins game, in Kansas City! He and I drove down to Kansas to witness the baptism of little Thomas Isaiah, who was named after Isaiah.
But now that summer is over we get to Isaiah's Big Day. His First Day of School!!! In January of 2012 Isaiah was diagnosed. So school was replaced by hospital stays for this little 3 year old boy. At 4 Isaiah had a Bone Marrow Stem Cell Transplant last August. So last year his immune system was too weak to be around any kids. So, another year of Pre-School was taken from him as he spent his days either cooped up at home or at the hospital. But now it has been over a year since his Transplant. Isaiah is doing Phenomenal! He is healthy! Doctors can find No Sign of Cancer! His Immune System is getting stronger and stronger every day. And he finally started Pre-School today at Claire Ann Shover Nursery School in Fergus Falls! Praise the Lord. God is so good. Isaiah is finally getting the chance to live life as a normal little boy. Thank you God for each and every 'normal' day we have with Our Little Super Hero.
Written Jul 10, 2013 2:10pmIsaiah was able to have his Renal scan done early so he is already back in his room, awake from the Anesthesia and already ate some Rice Crispies and is now working on a bowl of Cheerios! We will see the doctor a little later once the results come back. After that we should be getting discharged and heading back to Fergus Falls this evening.
We are excited for a night at home with the family with a home cooked meal and good nights rest in our own comfy beds.
Thank you for all of your prayers. God continues to hear them all and they are being answered each and every day.
Written Jul 9, 2013 10:36pmSeveral people have been wondering what is going on with Isaiah. Well there is much to say but nothing new to report.Last night Isaiah spiked a fever and it jumped up to 103. with Tylenol and rest the fever broke during the night and has not returned. He has no other symptoms except a slight runny nose that leads to the occasional cough. After that scary moment last night, he was fine all day today.This morning we saw the Ear Doctor and he reported that Isaiah has had no new hearing loss. Praise God for that. He does, however, continue to have significant losses in his high range sounds. This include S, Sh, Ch, Th and Z. He will have a particularly hard time hearing those sounds when they are quiet or when there is a lot of background noise. We will have to consider hearing aids for him in the future, possibly when he starts school.We also drove over to the eye doctor today to have further testing to check out why Isaiah's eyes are not dilating correctly. They eye doctor checked him out, and checked his MRI results and agreed there is no cancer there causing this issue. Again I say rejoice! She did thorough testing that involved multiple eye drops being put in Isaiah's eyes which he fought tooth and nail and screamed and cried with each drop. Her results completely ruled out Horner's Syndrome. So now Isaiah is back to square one, nothing is wrong with him, no cancer, no major side effects, except some hearing loss and eyes that are not dilating correctly. We are now supposed to keep a close eye on Isaiah's eyes and ask him frequently about how his vision is to make sure there are no more symptoms and things are not getting worse. Nobody ever likes a mystery unsolved but we are thankful that all of the worst case scenarios have been ruled out.Last but not least for today was the Renal scan to check that Isaiah's kidneys are functioning properly. The Nuclear Med dept. refused to do the scan today because Isaiah had radioactive dye injected yesterday for his bone scan and they would not do that again today as it had been less than 24 hours. I am glad they have Isaiah's best interest in mind. This means that the scan will not take place until tomorrow at 2PM so we had another night in the hospital, and another long day of NPO, not being allowed to eat, for Isaiah. Pray for Isaiah as he will be hungry throughout the day. And pray for me and the nurses and hospital staff as we try to distract him from this all day.When all is said and done we will be glad to have all of these tests behind us with such good results. And Isaiah and I will be glad to be home in our own beds with the rest of the family.