× Estamos introduciendo nuevas características a CaringBridge. Las traducciones al español no están disponibles actualmente, pero esperamos poder agregarlos pronto. Gracias por su paciencia.

×

CaringBridge Is Funded by People Like You

Make a donation to CaringBridge

Honor Isabella with a tax-deductible contribution to CaringBridge today.

Click here to make your donation.

Mi historia

Isabella Rebecca Parker
born January 30th, 2009 - 2:55pm
5 lb 7 oz and 18.5 inches (est)

Bella has Osteogenesis Imperfecta Type 3. This brittle bone disease affects less than 50k people in the US which makes it very rare. There are many types of OI, but type 2 and 3 are the most debilitating ones.

Click "Read my Story" to hear more...



Hello everyone, my name is Isabella Parker and I have OI. I am 2.5 years old now. I have had 25 fractures since birth. My favorite things are dancing, Dora, Elmo, and playing with my brothers. I just got a new wheelchair and I am able to get around now by myself. I am trying to stand now and I am weight bearing on my legs. 

I still get my Pamidronate infusions every 8 weeks at Lebonheur they are now one day treatments instead of three days. I also go to Omaha Children's Hospital every year to visit their OI clinic and visit oi specialist. I will be getting rods for my legs soon and hopefully they will allow me to walk.

I understand that alot of people are praying for my me and I want all you you to know how much I appreciate it. Without all of you, I may not have had much of a chance. There is no power greater than prayer.

Watch for updates from them in my journal as things seem to change from day to day.

Fuente

William Parker posted a new journal entry, "Isabella Turns 5!".

5 years ago today, Mindy and I made that long trip touncertainty, an event to which our little miracle baby was born. I rememberlooking down and Mindy as we both heard the ... Lea más

Janette Tolbert signed Isabella's Guestbook.

Hello Isabella I am a friend of your Gran's.  I want you to know that your Gran talks about you all the time.  Your Gran is a pretty special person herself.  I am so ... Lea más

Becky Humphrey signed Isabella's Guestbook.

Happy Birthday Bella. My how time has flown. I'm so glad I've become friends with your mom and dad, but most of all I'm so happy that you and Skyller are such good ... Lea más

Wanda Calvert signed Isabella's Guestbook.

Happy 5th Birthday to cute little Isabella.  You have been blessed by amazing loving parents, family & friends who have helped you along with all the medical staff, ... Lea más

Gran signed Isabella's Guestbook.

Our family was blessed 5 yrs ago today when you were born!  You have touched so many people in way never imagined.  You are a delight to be around---an inspiration to ... Lea más

Elizabeth Wade signed Isabella's Guestbook.

i have watched this little girl grow up and the joy she brings to her grandmother's face.  When Muffin talks about her she just glows (but the same is said for when she ... Lea más

William Parker added a new photo.

William Parker added a new photo.

William Parker added a new photo.

William Parker added a new photo.

Show more recent activity